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@holbrop

When I was first diagnosed I had to have several weekly phlebotomies to get my hematocrit under control. The magic number for me is 42. If I go higher I schedule a phlebotomy. The HU is keeping my platelets stable. I’m now on HU every other day with monthly lab draws. We’re hoping I’ll only need phlebotomies every few months. It takes a while to,get adjusted.

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Replies to "When I was first diagnosed I had to have several weekly phlebotomies to get my hematocrit..."

Same here! Weekly phlebotomies fir 5 weeks and now trying to get the HU to where my platelets stabilize. They were at 777 after 5 phlebotomies and HU they dropped in the 200’s. Off HU and no phlebotomy for 7 weeks, platelets back up to 600 now taking every other day and they’re 360 which is acceptable. Hoping they don’t jump back up. I was diagnosed in January. My doctor says Hematocrit needs to be 45 or under. I’m at 42.9 so probably next lab draw in 4 weeks I’ll hit that.