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RLS Dead End?

Sleep Health | Last Active: 2 days ago | Replies (54)

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@rfrederi

You will augment on this drug. You will need more and more. Then it makes things even worse.

Mark Buchfuhrer, MD Is a great reference for the treatment of RLS
Dr. Winkleman has also written how they had it wrong and it should not be used as it was before the evidence proved the augmentation.
In recent years, it’s come to light that as many as 50% to 70% of patients using these medications develop a severe worsening of symptoms called augmentation within 10 years.2,3 In such cases, RLS symptoms spread to the upper extremities and start earlier and earlier in the day.
/sleepreviewmag.com/sleep-disorders/movement-disorders/restless-legs-syndrome/opioids-rls/
I am new and cannot post a link. I took off the HTTP in the addresse.

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Replies to "You will augment on this drug. You will need more and more. Then it makes things..."

We discovered the sad truth after becoming members of the Restless Leg Foundation. My husband had already tried gabapentin and Lyrica with his primary physician. The neurologist prescribed increasing dosages of ropinerol & pramipexol in combination of gabapentin & oxycodone. We finally settled on oxycodone when out of frustration, he tried my oxycodone, finding that it helped more than anything. Then we found the RLS Foundation, discovering that what we’d stumbled upon had become the recommended treatment. Unfortunately the damage due to augmentation has already been done….things have gotten much worse over the years. We did test ferritin levels, doing an iron treatment without improvement. There is no one treatment for all.

Do yourself a favor, become a member of the Restless Leg Syndrome Foundation & keep current on emerging treatment.

I too was put on pramipexole .5mg, and for 2 years I was doing okay- but it started getting worse, so I did some research and came across the augmentation and knew that was my problem. I had my yearly appointment last Friday and the Dr. wanted to up my dosage. Thank God I had read about augmentation from RLS Foundation prior to the appointment, I told him flat out- no more , but sadly, I’ve only had 4 hours sleep in 5 days.
If anything works, I’d love to know. Pickle juice worked for leg cramps, but not the RLS. I am scheduled for a SIBO test in September - hoping that may provide insight.
Good luck on your quest!