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CLIPPERS: Looking to connect with others

Autoimmune Diseases | Last Active: Dec 7 10:15pm | Replies (323)
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@liztbnr

I called GARD and they were very kind and helpful. Gave me names of three CLIPPERS specialists for a doctor-to-doctor consult in case my GP agrees to work with them in prescribing a steroid-free alternative for me. June 2 appointment. liz

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Replies to "I called GARD and they were very kind and helpful. Gave me names of three CLIPPERS..."
Becky, Volunteer Mentor | @becsbuddy | May 4, 2023

@liztbnr Wow!! That’s so great!! The doctor may want to repeat all the blood tests, MRI’s, whatever, so they have a really good picture. They may even want a brain biopsy and spinal tap. I had both and they were no big deal. Took some Valium!
Now, you have to come up with all possible questions that you want answered. Write them in your journal with the answers. If you’re not great at note-taking, use the recording device on your phone (get the doctor’s permission!). You can listen later and take notes again.
I’m so excited for you!! Will someone go with you as your 2nd set of ears?

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