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Living with metastic prostate cancer: Any positive stories to share?

Posted by olsente @olsente, Feb 17, 2023

Diagnosed with metastic prostrate cancer Nov17,2022, the cancer had already spread to my pelvic bone, lymph nodes , thoracic spine and throughout my bones fracturing 11 ribs, and to top it off 3 tumors in my head 1 of them behind my right eye causing vision problems. I started chemo Nov 28 ish , I’m on casodex and get the Lupron injection! My symptoms were back pain and I had seen multiple doctors through middle summer/fall! These doctors had me on physical therapy , accupuncture, 2 specialist stated I needed surgery on my back, they filled me with pain meds..not one doctor did series of blood test! Only test was an X-ray! My wife took me to mercy hospital Nov 11 in Buffalo because I was in so much pain and could barely walk. Within 4 hours in the ER the doctor told us they were quite sure I had cancer and would need to admit me run a lot of tests along with getting me healthy enough to go home.Sure shit I was admitted for 13 days,, then the day after my first chemo I ended up back in the hospital for 7 more days, I have had so many blood transfusion due to my counts being so low, a Foley catheter was put in me as well because I couldn’t urinate! I still have my catheter in and am doing my chemo! Does anyone have anything positive they can share with similarity!!! I am having my wife write this due to my vision

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melcanada | @melcanada | Apr 10, 2023
In reply to @rbendelstein "Likewise. Stay positive and enjoy every day. Also check into natural remedy supplements to traditional medicine...." + (show)
@rbendelstein

Likewise. Stay positive and enjoy every day. Also check into natural remedy supplements to traditional medicine. Trials have shown that certain mushrooms have shown to be very effective.

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First cosodex then injections of Zolodex If it progresses Enzalutamide

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melcanada | @melcanada | Apr 10, 2023

First cosodex then injections of Zolodex If it progresses Enzalutamide

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jb2buckwater | @jb2buckwater | Apr 10, 2023

My brother had back pain similar to your description. Turns out a blood test suggested multiple myeloma which was causing high calcium in blood due to bones leaching out calcium. His vertebrae were collapsing causing back pain. Good News, he survived 7 good years beyond the point at which they told him he had 3 months to live. He used Chemo, new age meditation, diet modification, exercise, and a lot of prednisone. Not easy, but 7 good years.

I wish you the best going forward.

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kchris5174 | @kchris5174 | Apr 11, 2023

I’m 82 and, even though it has metastasized to various locations, I never felt better. It’s dormant thanks to the medications. I also believe that continuing my exercise program, and Pickleball, have been very helpful for my attitude and physical well being.

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dsingstock | @dsingstock | Apr 11, 2023

I was diagnosed with pc in 2009. Went through 25 sessions of radiation and Bracytherapy in 2010. Evaluated through 2015 and psa

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butch2023 | @butch2023 | Apr 11, 2023

I had my prostrate removed in the year 2009. Have cancer taking Lupron which I am still taking. Lupron has stopped working Dr. says I keep taking Lupron. Had been taking xtandi but Johnson and Johnson quit furshing the medicine to me anymore, Took Erleada for two weeks my feet swollen plus I just felt so terrible I told my Dr. that was not going to take it any more. I been having little TIA's 80% blockage of some of my arteries,so now have to blood thinners. Back hurts not eating very good. Weigh 133 with my clothes on. Thank you fdor listening to me. Butch

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2 replies
butch2023 | @butch2023 | Apr 11, 2023
In reply to @butch2023 "I had my prostrate removed in the year 2009. Have cancer taking Lupron which I am..." + (show)
@butch2023

I had my prostrate removed in the year 2009. Have cancer taking Lupron which I am still taking. Lupron has stopped working Dr. says I keep taking Lupron. Had been taking xtandi but Johnson and Johnson quit furshing the medicine to me anymore, Took Erleada for two weeks my feet swollen plus I just felt so terrible I told my Dr. that was not going to take it any more. I been having little TIA's 80% blockage of some of my arteries,so now have to blood thinners. Back hurts not eating very good. Weigh 133 with my clothes on. Thank you fdor listening to me. Butch

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Forgot to mention I am 83 years old. butch

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melcanada | @melcanada | Apr 11, 2023
In reply to @bigmaya "Hello All, My 71 y/o husband has metastatic PC. After pills, chemo, radiation we're now waiting..." + (show)
@bigmaya

Hello All,
My 71 y/o husband has metastatic PC. After pills, chemo, radiation we're now waiting for health fund to approve enzalutamide his oncologist prescribed. Hopefully this will give him some respite!! I find it very upsetting that no professional really "enlightens" one about the beasty long term side effects of chemo or radiation and that not every pain and ache means that mets are spreading... as obviously every patient is terrified this might be the case.
My husband was complaining about back pain and bowel issues and has been put on fentanyl which has also horrid side effects and even causes several of the pains and aches it's supposed to help with.
He's having a lower back/spine/waist ct this Thursday. The bowel marker test came back negative Thank God!
Can anyone here relate / comment please?? Wishing you all well being and peace of mind. Thank you.

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Enzalutamide works psa dropped from9.8 to 1.7 in 2.5 months
Keep Zolodex injections
Add calcium

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dsingstock | @dsingstock | Apr 12, 2023
In reply to @butch2023 "I had my prostrate removed in the year 2009. Have cancer taking Lupron which I am..." + (show)
@butch2023

I had my prostrate removed in the year 2009. Have cancer taking Lupron which I am still taking. Lupron has stopped working Dr. says I keep taking Lupron. Had been taking xtandi but Johnson and Johnson quit furshing the medicine to me anymore, Took Erleada for two weeks my feet swollen plus I just felt so terrible I told my Dr. that was not going to take it any more. I been having little TIA's 80% blockage of some of my arteries,so now have to blood thinners. Back hurts not eating very good. Weigh 133 with my clothes on. Thank you fdor listening to me. Butch

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Sorry Butch that you are experiencing so many side effects. I pray that some how you can win this battle. I am on Eligard and Xtandi, which has given me some nasty side effects too.

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1 reply
olsente | @olsente | May 3, 2023
In reply to @ringmastr1 "I was just diagnosed a with Stage 4 a few weeks ago. I'm 54. I am..." + (show)
@ringmastr1

I was just diagnosed a with Stage 4 a few weeks ago. I'm 54. I am now taking Abiraterone and Prednisol. Next week I get my first shots of Xgeva and Lupron from my oncologist at Phelps in Westchester. What meds have you taken that have been so successful? I'm learning so much, so quickly about something I never expected

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I did Xgeva and lupron for 5 months andNeulasta and now I’m on Xtandi. Hot flashes are unbearable sometimes. I wish you luck, I’m on methadone for pain along with oxy 10 mg

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