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← Return to POTS in 12yo daughter
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So it started about a yr ago with stomach aches. Brought her to GI who took X-rays and saw big block up. She was still “going” because the new poop was going around the blockage and causing the stomach pain. She did a few clean outs and is currently on miralax 2x day.
Late last yr she started getting headaches and dizziness, seeing spots and nausea.
Being at the puberty age I assumed was the cause combined that her older sister has migraines.
Back to the pediatrician and they said it was likely. Drink more water, headache journal etc.
Because she missed a lot of school due to dr appts she started having “anxiety attacks when I woke her up from school. She said she was nervous about missing and going back cause of kids judging her for it. Went to the school found out there were no issues there. It’s now been 2 wks since she has gone. But she doesn’t get attacks like that any other time.
Went to neurologist today who thinks it’s POTS. Did the blood work for Lymes etc, ekg today. EEG scheduled for next week
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Since it's been a year, what new information have you come across? Also, how is she doing now? Is she doing meds and physical therapy? My daughter was diagnosed two months ago, has just started meds, and is probably going to have to re-do her tilt test to be considered for the POTS program at MAYO. She was diagnosed with HyperPOTS at Nemours. We did all the gastric studies imaginable, while waiting for the autonomic study, and then came to MAYO for a second opinion and also to rule out cardiac issues. We've joined a few FB Groups to hear what others are going through, therapies taken, and tips for living with it. My daughter has all the symptoms you described.