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Alzheimers: Anyone else out there living with dementia?
Brain & Nervous System | Last Active: Aug 1 5:34pm | Replies (37)Comment receiving replies
Hello,
At age 63, I am the youngest of five siblings and I fear will we sooner or later suffer from dementia since our mother, her mother, and all her siblings did. I don't have any symptoms but the issue is on my mind, especially since my brother is ten years my senior and the most likely to be headed for the dreaded slow goodbye.
I'm interested in participating in clinical trials that address early detection and treatment. I also welcome feedback from those with knowledge and information on how to get involved.
Replies to "Hello, At age 63, I am the youngest of five siblings and I fear will we..."
if you go to the Web-Sites of the larger, well-known medical institutions ie MAYO, John Hopkins, Duke, UNC, Vanderbilt etc they often have categories for clinical trials that they are conducting. I'm sure the Alzheimer's foundation does as well. Just gotta dig for them! For sure your Physician should be aware of any that are being conducted. That may be a long shot but it doesn't hurt to ask!
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I got on Lequembi through my neurologist. I began seeing the neurologist when my foggy brain became obvious to me and to others. I went through a battery of various different tests over many months and…bingo—I won the jackpot—early/mid onset Alzheimer’s!
Several months ticked by while I waited to be approved to receive Lequembi. Since I live in a rural area, the next challenge was finding a facility that would give me the appropriate infusions. A couple of months ticked by; finally we found a place relatively nearby! Success! So, yes the side effects—which I hadn’t been prepared for—are onerous, indeed. The effects last roughly 24-48 hours after each infusion. Then, I’m back to a happy, healthy normal, returning to my happy, healthy, normal life. I am tough, and, this—although not perfect—beats its alternative. Enough said!