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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Mar 20 8:31am | Replies (392)
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@loribmt

If you wake up gasping, that can a sign of sleep apnea. An Overnight oximetry test is super easy and very inexpensive for a doctor to order. It might be worth talking to your doctor about the possibility. I had no idea the connection with SA sleep apnea and the possible rise in hemoglobin and hematocrit. I do hope you find the cause soon so that you can start feeling healthy again. Let me know what you find out, ok?

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learnandlive | @learnandlive | May 8, 2023

Hello, have just read read posts about sleep apnea. I have had PV with JAK2 for six years. phlebotomies, Hydrea, now Jakafi have managed it and life is enjoyable. I am scheduled for sleep test May 28 and am very curious to see how sleep disorders may affect this condition. I have read many reports that it does have a effect. Anyone new to PV/ JAK2 keep positive it takes time to adjust meds and outlook but it can be very manageble.

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