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High Factor VIII (8) Blood Clotting Disorder and its Impacts on life

Blood Cancers & Disorders | Last Active: Sep 10 9:49am | Replies (133)
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@momto5

I too have elevated factor 8. I currently have my second blood clot, first 5 years ago. Both clots unprovoked. It is so difficult to find info on this disorder. Anything you might have found?
Thank you, Chari

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Replies to "I too have elevated factor 8. I currently have my second blood clot, first 5 years..."
heidi2020 | @heidi2020 | May 1, 2023

You will find a lot of information on this website. https://www.stoptheclot.org/

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carriebythesea | @carriebythesea | May 14, 2023

Hi Chari,

I apologize for my delayed response. I haven't found too much new information as I recently moved, so I'm getting re-situated.

Have you been a treatment since your first clot?

As far I as I know, I haven't had a recurrence. I've been on one anti-coagulant or another since my original incident. After the first one, chances of another one go up and my docs haven't been willing to take me off until/unless it's considered safe to do so. Factor 8 was the only thing out of whack in my test results, so that's why it was thought to be genetic. That said, I think that there is more being learned about the impact of trauma on F8.

I've been kind of wondering about a hormonal connection, although I haven't seen any specific correlations to support that line of thought.

Carrie

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