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ADPKD and Intermittent Fasting

Kidney & Bladder | Last Active: May 2, 2023 | Replies (8)

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@gingerw

@mrainne
Well. This is quite the question! I hate to think I have hijacked this thread, but you were the one who created it, so here goes!

I cannot be transplanted for a new kidney because of my cancer status. I am on dialysis for the rest of my life, my life as I choose to live it, or not. I am attaching a link here from the National Kidney Foundation, that addresses the question you pose. Personally, I have known one person who chose to not go forward with dialysis, much to her husband's sadness. It is indeed a personal choice.

As far as being eligible for a kidney transplant, ask your nephrologist for a referral to a nearby transplant center, if you want to explore that option. Remember, there are several great websites also that will give you preliminary information. While my options don't exist, that doesn't mean yours don't. Does this all help you?
https://www.kidney.org/atoz/content/dialysisstop#:~:text=This%20varies%20from%20person%20to,and%20their%20overall%20medical%20condition.
Ginger

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Replies to "@mrainne Well. This is quite the question! I hate to think I have hijacked this thread,..."

Thank you, Ginger. That article was very helpful. Mayo Clinic just gave me an appointment this morning. It sounds like I will be there for a week in June. I'm so grateful! All my records and imaging were electronically sent. I feel like I'll have a great team to discuss all this with. I'm getting tired of "googling" articles. Half the time I don't know what to ask to get information. And when my nephrology appointments are 20 minutes, well you know. I so appreciate your correspondence. Everything you say has been extremely helpful. You get 5* as a volunteer from me. I hope our thread has been helpful to others, even though it's been us primarily discussing.
I cannot thank you enough! Dialysis is certainly a personal choice and I have to think about it more.