I'm so sorry you haven't been able to get a definitive diagnosis. It's so frustrating! If you haven't already seen one, I recommend a Rheumatologist because they are the "Detectives of the Medical World". They tend to look at the whole body and how your symptoms relate to each other. Have you done any research on
" Soft Tissue Sarcomas"?
Your symptoms are suggestive of this condition. Hoping you find the answers that you need.