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Soft-Tissue Masses Not Diagnosed

Blood Cancers & Disorders | Last Active: Aug 23, 2023 | Replies (20)

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@ladyaceintx1

I'm so sorry you haven't been able to get a definitive diagnosis. It's so frustrating! If you haven't already seen one, I recommend a Rheumatologist because they are the "Detectives of the Medical World". They tend to look at the whole body and how your symptoms relate to each other. Have you done any research on
" Soft Tissue Sarcomas"?
Your symptoms are suggestive of this condition. Hoping you find the answers that you need.

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Replies to "I'm so sorry you haven't been able to get a definitive diagnosis. It's so frustrating! If..."

Thanks for the empathy - it is very frustrating. I've researched sarcomas extensively, as well as NETs (neuro-endocrine tumors) and other cancers and conditions that cause slow-growing masses. Indeed, the information I've found is suggestive that I have one of these illnesses - but, as I noted, I need a specialist who will investigate for these rare conditions and pinpoint my problem. Several years ago, I did see a rheumatologist, but he could not make any diagnosis...