← Return to High Coronary Calcium Score: How do others feel emotionally?

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@hikerguy62

You might want to take a look at the following (reputable) URL that talks about the accuracy of CAC scores. If you have links to other reputable sites that contradict this info, please share with us. I'm keeping an open mind but given that this score is calculated by a computer, I trust it's accuracy:

https://www.health.harvard.edu/heart-health/calcium-scan-concerns

Best of luck.

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Replies to "You might want to take a look at the following (reputable) URL that talks about the..."

I dont know if this helps you any, but I designed cardiac imaging systems for NASA back in the day, so when I see all the high CAC scores on this forum I am dubious that they are without error.
The most obvious potential error is heart rate. I know for me, my heart rate was pounding fast, as I am not a great fan of getting stuck in a tube. A lot of these CT Heart Scan imaging systems were designed for a resting heart rate of 60 bpm, with the assumption that the HR would be below 75 bpm.
My rate was like 110 to 120. I imagine others on this forum have had the same experience. Nothing was said by the radiographer at the time about my heart rate.

Here is a nice paper on CT Heart Scans and heart rate. I shared it with the group back in December:

Influence of heart rate on coronary calcium scores: a multi-manufacturer phantom study
https://link.springer.com/article/10.1007/s10554-017-1293-x

The paper was published in 2017, so a lot could have improved by now, but math can only go so far in compensating for motion artifacts. That said, they were seeing up to 50% greater scores on some CT systems due to moderately high heart rates on several brands of CT systems.

All I think it indicates is that there is a potential that there are imaging errors and that it is wise to use other imaging methods to evaluate where a person is at.

My latest experience was with a cardiologist that believed so strongly in the CAC score alone that he felt that no other imaging was necessary.

So for me, with such a high score and the possibility of error, I want imaging that will evaluate my heart condition as if CT Heart Scans didnt even exist. A completely independent view. I was greatly surprise when the cardiologist would not do so (echo with stress, nuclear with stress), and would cath me only if I insisted on it---else he would not order ANY imaging.

There are a lot of different views on diagnostics for heart disease, and then again treatment. The most conservative methods have been the use of statins on the assumption that cholesterol is the culprit, and angioplasty and stents on the mechanical side. It is a tried and true method, and it works for some people and not for others. The cardiologist I saw falls into this camp. That is ok. But his bedside manner and condescending view that all other methodologies are seriously flawed was not welcome (at least to me).

If a cardiologist is going to be poking around in my heart arteries, I am interested in intravascular lithotripsy. This uses shaped ultrasound shock waves to break up the calcium and plaque both in the artery and the wall. It is not exactly a new idea, but the ShockWave execution of the idea is novel and refined, and to me appears to work well.

The cardiologist I saw literally said IVL "its garbage!" He is entitled to his opinion, but I find hope in the technology, and there are a growing number of cardiologists that feel similar. So I will be seeking one out that shares my enthusiasm towards the technology in case I need it.

As for statins, there are a lot of great alternative medications available now that will lower cholesterol. The emerging question is what roll does inflammation have as the primary cause of heart disease, with cholesterol being an interim component of the bigger picture.

I imagine skipping forward to a nuclear perfusion test with stress is the likely first step for me. If that indicates immediate concerns, then I would like someone capable of IVL in the room if they are going to go into my arteries for a look---might as well get on with it if they see a blockage or the need for pipe cleaning.

That is my plan. I was widely taken back at the veracity of the cardiologist I met with last week. It was his way or the highway. That is ok if he feels that way, but to suggest to the patient that they should go home and live out their short life for not following their personal methods was just ridiculous.

Every one has to find something that is comfortable to their own needs. You are betting your life on it. It is a personal decision.