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Does anyone have neuropathy related to MGUS?

Blood Cancers & Disorders | Last Active: May 14 11:39am | Replies (102)

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@susanh824

I have had two bouts of trigeminal neuralgia. I never thought to connect it with MGUS.

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Replies to "I have had two bouts of trigeminal neuralgia. I never thought to connect it with MGUS."

I also have just recently been diagnosed with MGUS and Trigeminal Neuralgia. I have the pain in my jaw all the time, and thus have to take Pregabalin 50mg twice a day. I would never have known about the MGUS, except my neurologist requested the necessary blood tests to eliminate this complication and there it was. The Hematologist has been very positive about it and says if my next test has not changed I do not have to have another test for another year. I was informed that the Trigeminal Neuralgia was caused because the myelin covering on our nerves becomes worn as we grow older and when it is gone, the nerve frequently presses on a vein and that is what causes the pain (I am 92). Has the doctor given you any explanation of the cause of your pain?
Gina5009