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Soft-Tissue Masses Not Diagnosed

Blood Cancers & Disorders | Last Active: Aug 23, 2023 | Replies (20)

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@lindseymaries

Just bookmarked and will be following. @tomlinaz I completely relate to what you’re referencing because I am also experiencing the same thing. I am a 41 yo female and I’ve noticed small lumps/masses under my skin over the last 20+ years. Different doctors have given somewhat similar explanations upon examinations. Nothing ever sets off any red flags in bloodwork either. However, within the past year the lumps have been multiplying and becoming more visibly noticeable. I have hEDS along with a number of other diagnoses and am looking for answers as well. Thanks for posting.

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Replies to "Just bookmarked and will be following. @tomlinaz I completely relate to what you’re referencing because I..."

Lindsey, you definitely have my sympathies. Mayo Clinic has a genetics research program called Tapestry. Not sure how/why I got an invitation to participate - it's not meant to be "diagnositic". But I participated anyway, on the chance of finding something. Here is some contact info, if you want to take the chance that they might find something out for you: Email TAPESTRY@mayo.edu or call 507-422-6373.