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Staying strong and facing an uncertain /certain future

Caregivers | Last Active: Jun 22, 2023 | Replies (60)

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@valandsheri

Hi Lori and Good Morning! Checking on you after your trip to the Mother Ship. Hoping that all systems are go and your test results were excellent!

Mr. Ray of Sunshine is good. ☀️☀️☀️

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Replies to "Hi Lori and Good Morning! Checking on you after your trip to the Mother Ship. Hoping..."

Good morning, Sheri! Well, now I’m feeling the warm fuzzies! Thank you for checking in with me.
The visit to the Mother Ship in Rochester was “Unremarkable”. Which, in the medical world, is the best word we can hear in a followup appt. Hah, not that I’m unremarkable. 😂 My poor doctor will remember me forever…I give him a run for his money. 😂
But in the leukemia/bone marrow transplant world, I’m in exceptional health. Yessss. Better living through chemistry! That’s for anyone who dreads the Chemo word! It works and buys us time!

The MRI showed my spinal cord has fully recovered from the demyelination of a few years ago. I still have electrical aftershocks, I call them. So I have an neuro consult coming up in June…bzzzzzt. Haha. I’m like an old classic car whose wiring has a short somewhere. We need to figure that out.

The highlight of the trip was being able to meet personally with two of my fellow Connect Mentors. We’re all patients at Mayo Rochester and our planets happen to align for followup appts, so we’d all be there together!! The breaks between appts allowed time for us to have a brief but meaningful and friendship bonding meeting!

I’m thrilled to hear Mr Sunshine is beaming his positive energy again! Helps when life returns to a level of normalcy. What are you up to?