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← Return to New and undiagnosed
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Lung Health | Last Active: Dec 12, 2023 | Replies (131)
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Hi Yvonne, it's great to hear you are doing well. As far as the pantoprazole, maybe ask your primary about a "trial vacation" from it?
I'm with you on missing favorite foods. But maybe you can try adding them, one at a time and in small quantities, to your diet? I have been able to manage this with fresh-squeezed grapefruit juice or the occasional tree-ripened grapefruit this winter after not tolerating that for 5 years. The key for me is to have it early in the day, and a moderate amount. I also know I can eat chili - before 6 pm. If I eat it later, I will have a miserable night.
I hope I never have to give up my daily dark chocolate though!
Sue
Replies to "Hi Yvonne, it's great to hear you are doing well. As far as the pantoprazole, maybe..."
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I went to my pulmonologist today and he said my lung function test was good and my 6 minute walk test was good however the CT scan I had last week compared to the one I had 3 months ago was still basically the same. The ground glass opacities are much less and he is pretty sure that it was ours due to aspiration pneumonia from GERD. He said the scarring has not changed. Now I don't know if scarring gets better with lungs ? Or stays the same or gets worse. But he said it's the same as in the last CT. Having said that he has decided to err on the side of caution and is sending me to a lung scarring specialist. And he wants my lung function test and CT repeated in 6 months. Is anyone familiar with lung scarring and does it generally get better? I think just the thought of going to another specialist, when I thought this nightmare was over, of course worries me. I'd never even heard of a lung scarring specialist. Anyone? Thanks in advance 🙂