← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@starbuck41

Hello
I am a 59yr old male 6’4 260lbs, I am going to be the first veteran in America to get this drug through the VA, many cardiology departments across the globe are watching my case to evaluate and establish for other veterans. I’ve seen war, but the warnings on the packaging is making me nervous. Any advice?
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Replies to "Hello I am a 59yr old male 6’4 260lbs, I am going to be the first..."

Good morning! First of all, thank you for your service! That is really exciting that you will be the first veteran to take Camzyos. I was really nervous too. I read as much as I could, joined this group etc. I was feeling so awful. My shortness of breath was totally debilitating. I am 58 and have always been very active. HCM stopped me from doing many of the things I love to do. Although I was scared, I was also hopeful that this could be the answer to help me feel better. I have now been on Camzyos for a month and am having my first ECG this afternoon. It is honestly a miracle what this drug has done for me. I am back to being able to take walks and not worry even walking from place to place. No more dropping off at restaurant or store doors, because I couldn't walk very far. My only side effects have been feeling kind of dizzy at times. I am getting my life back! I wish the same for you!

Hello -

I was also nervous about this new medication, which led me to this Mayo clinic forum. I did as much research as I thought was useful, and made the decision to try it. Everything has gone really smoothly for me and the doctor has been very rigorous about ECGs to make sure all is well. I have had excellent results and would certainly recommend this medication. I think that the cardiologists are monitoring patients very thoroughly.

Good morning! Did you start Camzyos yet? 🙂