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Hypereosinophilic syndrome (HES)

Blood Cancers & Disorders | Last Active: May 14 4:41am | Replies (59)

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@browser3

I was diagnosed with HES in January 2023. and have been on Nucala since February. My cardiologist recommended I get a work up at the Mayo Clinic. How long does that take ( one day, several days, a week?). What is involved? Thank you.

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Replies to "I was diagnosed with HES in January 2023. and have been on Nucala since February. My..."

Hellow @browser3 Welcome to Mayo Connect. You were recently diagnosed with HES ~ Hypereosinophilic Syndrome. We have a few members in our forum who have experience with this rather rare blood disorder. Below I’ve posted a link where you can connect with members @donnahes @mraymond @vkartsona @zenk @aer @jkupratis and others who share their experiences with HES or have family/friends with the condition.

~Hypereosinophilic syndrome.
https://connect.mayoclinic.org/discussion/hypereosinophilic-syndrome/

Mayo Clinic has this information on their main site:
https://www.mayoclinic.org/diseases-conditions/hypereosinophilic-syndrome/diagnosis-treatment/drc-20352856

As for a length of time for your initial consult, testing and diagnosis at Mayo, that’s difficult to predict. The first thing you will need to do is request an appointment. You can do this without a doctor’s referral but sometimes it helps to speed things along when a doctor sends in the request.

This link will take you to Mayo’s home page where you’ll see the option for the 3 Mayo Campuses…Rochester, MN Phoenix, AZ Jacksonville FL
A phone call will get you started! The coordinator on the phone will take it from there to let you know what’s required for paperwork, insurance, etc.

http://mayocl.in/1mtmR63

From my experience it’s good to plan for at least 3 days unless otherwise suggested, when your appointment is confirmed. You’d most likely be seen by a specialist to determine the type of testing required to help with a diagnosis. Things at Mayo can happen very quickly with scheduling subsequent tests sometimes the same day or the next. So allow yourself a few days.

Most hotels, at least in Rochester, center their service around patients at the clinic and are quite flexible with cancelations and extensions on rooms should you need to make changes.

Do you have a preferred campus?

Yes Rochester