Painful lump/spots after lumpectomy not going away?

Posted by lhwoz @lhwoz, Apr 18, 2023

Hello all

I am 10 weeks post last surgery (ILC
with lumpectomy and then re-excision).

I have had some painful spots since the 1st surgery, and then in general a larger tender spot under excision. I've been told that one is a seroma, but I am experiencing sharp pains, tenderness dull aches in these spots. I just finished radiation (and also got a nice case of shingles early on during radiation). While I am dealing with the skin irritation/rash its also these lumps that are sometimes so painful.

Has anyone experienced this? Do I reach out to my surgeon and press the issue? In early days I was told scar tissue under excision, seroma etc...Could it be my remaining clips/scar tissue are not healing as they should?

Any input from those of you who have had lumpectomies is appreciated.

Interested in more discussions like this? Go to the Breast Cancer Support Group.

@deluga

I had painful serums on both sides after lumpectomy. One went away after a few weeks from draining. The other took 2 months of packing at the Dr's office every day and put of my radiation . After radiation I had burns and the hospital had me use Covidien Xeroform Petrolatum which was expensive but worked wonders. Around 3 months afterwards I got Lymphodema which was very painful since many of lymph nodes were removed.. I went to OT for a month and now wear compression bra, do stretch exercises every morning, and massage 2ce a day. If you had any lymph nodes removed, do keep an eye out for lymphodema. Good luck.

Jump to this post

Oh my this is a lot to go thru but your info is so helpful. I appreciate you sharing. My MD is going to order and U/S of seroma bc she wasn't 100% is was seroma v. Scar tissue and then if seroma and justifiable they might drain it. Will see.

REPLY

Hello - this is Mulkey 518 - In 2014 I had a lumpectomy (three (3) small lumps removed. But after surgery I still had pain in the same place that I had prior to breast cancer surgery. Every appointment back to surgeon I complained and she would say it was the seroma (fluid fiilled in hole that was were lumpss were. Annually I would have the Mammogram and Ultrasound and each year they would say that the seroma is going down slowly. Well in April of 2023 a lump appeared on the outside of my surigical breast; it was itchy and painful. I got to shorten the story up before I run out of characters. WELL 10/17/23 (after a biopsy was performed) it was confirmed that I have a new RARE blood vessel cancer called Angiosarcoma. It was a delayed side affect to the 6 week radiation that I had back in 2014. I have been in pain for 9 years. Now this cancer is bad and aggressive. Who ever heard of anyone getting Radiation Cancer. Very little information on this cancer. Now i have to go back and have cancer surgery to have my breast removed and get chemotherpy - I am 73 years old. Sometimes doctors look at the age and mind think that a 73 year old person has lived their life - just go home and enjoy the rest of your life. But I am going to do the surgery if I can. I am currently scheduled for CT Scans, Brain scans to see if the cancer has spread. I am praying to God that it has not. I am so devestated and hurt. So I say to all who experience pain after breast cancer surgery don't let the doctor keep telling you that it is scar tissue, or the seroma or whatever - be presistence and get a second opinion (which I failed at. thank you for letting me vent. I just want to inform all of you and not to scare you. Nobody wants to walk in my shoes. Be very vigilant about your health cause if you don't nobody will because nobody knows what your body is going through but you. May God continue to Bless all of you.

REPLY
@mulkey518

Hello - this is Mulkey 518 - In 2014 I had a lumpectomy (three (3) small lumps removed. But after surgery I still had pain in the same place that I had prior to breast cancer surgery. Every appointment back to surgeon I complained and she would say it was the seroma (fluid fiilled in hole that was were lumpss were. Annually I would have the Mammogram and Ultrasound and each year they would say that the seroma is going down slowly. Well in April of 2023 a lump appeared on the outside of my surigical breast; it was itchy and painful. I got to shorten the story up before I run out of characters. WELL 10/17/23 (after a biopsy was performed) it was confirmed that I have a new RARE blood vessel cancer called Angiosarcoma. It was a delayed side affect to the 6 week radiation that I had back in 2014. I have been in pain for 9 years. Now this cancer is bad and aggressive. Who ever heard of anyone getting Radiation Cancer. Very little information on this cancer. Now i have to go back and have cancer surgery to have my breast removed and get chemotherpy - I am 73 years old. Sometimes doctors look at the age and mind think that a 73 year old person has lived their life - just go home and enjoy the rest of your life. But I am going to do the surgery if I can. I am currently scheduled for CT Scans, Brain scans to see if the cancer has spread. I am praying to God that it has not. I am so devestated and hurt. So I say to all who experience pain after breast cancer surgery don't let the doctor keep telling you that it is scar tissue, or the seroma or whatever - be presistence and get a second opinion (which I failed at. thank you for letting me vent. I just want to inform all of you and not to scare you. Nobody wants to walk in my shoes. Be very vigilant about your health cause if you don't nobody will because nobody knows what your body is going through but you. May God continue to Bless all of you.

Jump to this post

Mulkey, That's quite a story. Your experience is proof of the wealth of second opinions in medical care. Your body was telling you something was wrong. It was the surgeon who wasn't using her/his full brain to think of other possibilities. Hoping your CT scans are clear. This cancer crap is devastating on so many levels.

REPLY

Im sorry you are dealing with this! The unknowns and not knowing what to expect are so hard!
Do you think starting the radiation before you were totally healed from the pain/Saroma made it worse?

I had a very large Seroma after my initial Lumpectomy that had to be removed during my re-excision surgery.
I am now 3 weeks out from re-excision and have a sensitive lump between my nipple and my incision and am supposed to start radiation next week.
Idk if I should ask my Rad Onc if I can have an ultrasound before starting treatments to double check healing?
Anyone have any thoughts?
Thank you!

REPLY
@mulkey518

Hello - this is Mulkey 518 - In 2014 I had a lumpectomy (three (3) small lumps removed. But after surgery I still had pain in the same place that I had prior to breast cancer surgery. Every appointment back to surgeon I complained and she would say it was the seroma (fluid fiilled in hole that was were lumpss were. Annually I would have the Mammogram and Ultrasound and each year they would say that the seroma is going down slowly. Well in April of 2023 a lump appeared on the outside of my surigical breast; it was itchy and painful. I got to shorten the story up before I run out of characters. WELL 10/17/23 (after a biopsy was performed) it was confirmed that I have a new RARE blood vessel cancer called Angiosarcoma. It was a delayed side affect to the 6 week radiation that I had back in 2014. I have been in pain for 9 years. Now this cancer is bad and aggressive. Who ever heard of anyone getting Radiation Cancer. Very little information on this cancer. Now i have to go back and have cancer surgery to have my breast removed and get chemotherpy - I am 73 years old. Sometimes doctors look at the age and mind think that a 73 year old person has lived their life - just go home and enjoy the rest of your life. But I am going to do the surgery if I can. I am currently scheduled for CT Scans, Brain scans to see if the cancer has spread. I am praying to God that it has not. I am so devestated and hurt. So I say to all who experience pain after breast cancer surgery don't let the doctor keep telling you that it is scar tissue, or the seroma or whatever - be presistence and get a second opinion (which I failed at. thank you for letting me vent. I just want to inform all of you and not to scare you. Nobody wants to walk in my shoes. Be very vigilant about your health cause if you don't nobody will because nobody knows what your body is going through but you. May God continue to Bless all of you.

Jump to this post

I am sorry to hear that the doctors didn't listen to you. You are right that we need to persist in getting answers to our concerns. I am learning (now in my 70's) that I need to continue to ask and push for answers. Please don't let anyone tell you that you are too old for good health.

REPLY
@mulkey518

Hello - this is Mulkey 518 - In 2014 I had a lumpectomy (three (3) small lumps removed. But after surgery I still had pain in the same place that I had prior to breast cancer surgery. Every appointment back to surgeon I complained and she would say it was the seroma (fluid fiilled in hole that was were lumpss were. Annually I would have the Mammogram and Ultrasound and each year they would say that the seroma is going down slowly. Well in April of 2023 a lump appeared on the outside of my surigical breast; it was itchy and painful. I got to shorten the story up before I run out of characters. WELL 10/17/23 (after a biopsy was performed) it was confirmed that I have a new RARE blood vessel cancer called Angiosarcoma. It was a delayed side affect to the 6 week radiation that I had back in 2014. I have been in pain for 9 years. Now this cancer is bad and aggressive. Who ever heard of anyone getting Radiation Cancer. Very little information on this cancer. Now i have to go back and have cancer surgery to have my breast removed and get chemotherpy - I am 73 years old. Sometimes doctors look at the age and mind think that a 73 year old person has lived their life - just go home and enjoy the rest of your life. But I am going to do the surgery if I can. I am currently scheduled for CT Scans, Brain scans to see if the cancer has spread. I am praying to God that it has not. I am so devestated and hurt. So I say to all who experience pain after breast cancer surgery don't let the doctor keep telling you that it is scar tissue, or the seroma or whatever - be presistence and get a second opinion (which I failed at. thank you for letting me vent. I just want to inform all of you and not to scare you. Nobody wants to walk in my shoes. Be very vigilant about your health cause if you don't nobody will because nobody knows what your body is going through but you. May God continue to Bless all of you.

Jump to this post

I am so sorry to hear of this journey. Definately we need to keep pushing bc there is just something to knowing when something is not right. I am wishing you a speedy and successful treatment and sending you ❤️ and strength.

REPLY
@californiazebra

It sounds like you've just been through a lot with two surgeries, radiation and shingles. I had a mastectomy, not lumpectomy, but with my recurrent breast cancer in my chest, I had that tumor removed which would be more similar to your lumpectomy. I had radiation after the chest tumor removal. I had shingles 2.5 weeks after my mastectomy. I will say that I was constantly asking my doctors why this felt lumpy and that felt lumpy -- year after year. Nothing was flat as I had imagined it would be. No one ever really gave me a good answer. I heard scars, bone and some double-talk. I also still get random sharp pains 2.5 years after the chest wall tumor was removed. Had stabbing pains for years along my mastectomy scars, but I do have a keloid scarring disorder and had injections to stop that pain. I also have really bad tenderness where the chest wall tumor was removed 2.5 years ago and along my sides and parts of my chest 10 years after the mastectomy. I always assumed I was unique since I have a painful scarring disorder and a rare neuropathy that causes a lot of pain. However, in 10 years none of my providers that I ask about lumps, ridges, pains, tenderness, numbness ever seem surprised or concerned. I'm also curious to see how others respond here. Note: my recurrent cancer was not where I was complaining about lumps or tenderness. I didn't take an AI based on bad advice from my original oncologist and my current oncologist says I should have.

All that being said, that's me, every body reacts differently and we didn't have the exact same surgery. I had to look up seroma and that sounds viable and says it's common after breast surgery. If anything feels wrong to you, keep asking your providers about it and request another mammogram, MRI, ultrasound -- something to see what's going on. Even if nothing is wrong, worrying about it will drain you. If your team is not able to answer your questions to your satisfaction, seek a second opinion. Better safe than sorry. I hope it all settles down soon. Your post-radiation skin will go back to normal eventually. Radiation also gave me a lot of nerve pain toward the end of treatment. Wishing you the best.

Jump to this post

Fast forward my MD ordered an ultrasound and mammo for the seroma/scar tissue just to confirm. The radiologist saw tissue in the seroma and couldn't confirm that it was just a seroma so ordered a biopsy. The ultrasound pre biopsy saw an additional seroma (I had been telling them it seemed like 2 seperate lumpy areas) and so she punch biopsied both and also aspirated both to test fluid.

Thankfully all came back clear. Fat necrosis, scar tissue. Huge relief and thankful for the confirmation.

REPLY
@lhwoz

Fast forward my MD ordered an ultrasound and mammo for the seroma/scar tissue just to confirm. The radiologist saw tissue in the seroma and couldn't confirm that it was just a seroma so ordered a biopsy. The ultrasound pre biopsy saw an additional seroma (I had been telling them it seemed like 2 seperate lumpy areas) and so she punch biopsied both and also aspirated both to test fluid.

Thankfully all came back clear. Fat necrosis, scar tissue. Huge relief and thankful for the confirmation.

Jump to this post

So great that they biopsied both and it’s all clear! Yay! What a relief for you. Thanks for the update. 😊

REPLY
@mulkey518

Hello - this is Mulkey 518 - In 2014 I had a lumpectomy (three (3) small lumps removed. But after surgery I still had pain in the same place that I had prior to breast cancer surgery. Every appointment back to surgeon I complained and she would say it was the seroma (fluid fiilled in hole that was were lumpss were. Annually I would have the Mammogram and Ultrasound and each year they would say that the seroma is going down slowly. Well in April of 2023 a lump appeared on the outside of my surigical breast; it was itchy and painful. I got to shorten the story up before I run out of characters. WELL 10/17/23 (after a biopsy was performed) it was confirmed that I have a new RARE blood vessel cancer called Angiosarcoma. It was a delayed side affect to the 6 week radiation that I had back in 2014. I have been in pain for 9 years. Now this cancer is bad and aggressive. Who ever heard of anyone getting Radiation Cancer. Very little information on this cancer. Now i have to go back and have cancer surgery to have my breast removed and get chemotherpy - I am 73 years old. Sometimes doctors look at the age and mind think that a 73 year old person has lived their life - just go home and enjoy the rest of your life. But I am going to do the surgery if I can. I am currently scheduled for CT Scans, Brain scans to see if the cancer has spread. I am praying to God that it has not. I am so devestated and hurt. So I say to all who experience pain after breast cancer surgery don't let the doctor keep telling you that it is scar tissue, or the seroma or whatever - be presistence and get a second opinion (which I failed at. thank you for letting me vent. I just want to inform all of you and not to scare you. Nobody wants to walk in my shoes. Be very vigilant about your health cause if you don't nobody will because nobody knows what your body is going through but you. May God continue to Bless all of you.

Jump to this post

@mulkey518
I'm so sorry to hear about your ongoing issues and new kind of cancer. I did know radiation put you at risk for cancer years down the line, but I've never heard of angiosarcoma. I hope it hasn't spread. So many people are living into their 90s and 100s now that they should not feel 73 is good enough. Sorry you are made to feel that way.

The spot where I had the recurrent breast cancer tumor removed from my chest wall has been very tender to touch for 3 years now and feels sunken in. They never seem surprised and say it's just nerve damage. I do have a lot of nerve issues from a genetic disorder, but it always seems strange to me that it never gets better. There isn't a lump and I've had many CT scans in the past 3 years monitoring my cancers. I will now pay special attention to any skin or texture changes there. I had 37 radiation treatments nearly 3 years ago including 9 boost treatments so lots of radiation.

I just looked up angiosarcoma. The photo it shows would make me think it was skin cancer. Does your skin look abnormal? It does state angiosarcoma can be a rare side effect of radiation and other causes. It states people with the BRCA1/2 mutations can be more prone to it. I have the BRCA2 mutation. Do you have one of those mutations?

Thanks for letting us know. It gives us all one more thing to watch for and be our own advocates. Prayers for you. Please keep us posted.

REPLY
@mulkey518

Hello - this is Mulkey 518 - In 2014 I had a lumpectomy (three (3) small lumps removed. But after surgery I still had pain in the same place that I had prior to breast cancer surgery. Every appointment back to surgeon I complained and she would say it was the seroma (fluid fiilled in hole that was were lumpss were. Annually I would have the Mammogram and Ultrasound and each year they would say that the seroma is going down slowly. Well in April of 2023 a lump appeared on the outside of my surigical breast; it was itchy and painful. I got to shorten the story up before I run out of characters. WELL 10/17/23 (after a biopsy was performed) it was confirmed that I have a new RARE blood vessel cancer called Angiosarcoma. It was a delayed side affect to the 6 week radiation that I had back in 2014. I have been in pain for 9 years. Now this cancer is bad and aggressive. Who ever heard of anyone getting Radiation Cancer. Very little information on this cancer. Now i have to go back and have cancer surgery to have my breast removed and get chemotherpy - I am 73 years old. Sometimes doctors look at the age and mind think that a 73 year old person has lived their life - just go home and enjoy the rest of your life. But I am going to do the surgery if I can. I am currently scheduled for CT Scans, Brain scans to see if the cancer has spread. I am praying to God that it has not. I am so devestated and hurt. So I say to all who experience pain after breast cancer surgery don't let the doctor keep telling you that it is scar tissue, or the seroma or whatever - be presistence and get a second opinion (which I failed at. thank you for letting me vent. I just want to inform all of you and not to scare you. Nobody wants to walk in my shoes. Be very vigilant about your health cause if you don't nobody will because nobody knows what your body is going through but you. May God continue to Bless all of you.

Jump to this post

@mulkey518, you may wish to join this discussion in the breast cancer support group:
- Angiosarcoma of the breast caused by previous breast radiation
https://connect.mayoclinic.org/discussion/angiosarcoma-of-the-breast-caused-by-previous-breast-radiation/

REPLY
Please sign in or register to post a reply.