Hi and thanks for your kind reply.
I've had lots and lots of tests, my ct scan was clear and repeated ,was still reported as normal first off.
This was done 1st because Drs thought it was a kidney problem initially.
Bp still not altering much, tried 4 different drugs high doses,than after that potassium started dipping.Also was getting extreme thirst( Drs thought diabetes but neg test)palpitations, tiredness,cramps,tingles,digestion problems.Drs then thought I was suffering some mental illness/ attention seeking prescribed antidepressants!!
All tests coming back normal, it was soo frustrating as I knew something was wrong.
Multiple trips to emergency room ,only found low potassium. Discharged on medication for it to start up again once medication finished( sando k potassium supplements)
Dr said "but your potassium is always low its how you are" And "its better too low than too high"
Stupidly,I believed him.
Sent to gastro dr for evaluation of bloated gut. Told him my Xmas nightmare.
Went to see Dr early Dec, potassium again low.He refused to do anything about it,said insignificant. Desperately unwell at Xmas, potassium dropping ,felt terrible,heart rhythm changes,nausea ,all symptoms bad.
Went to emergency room, rushed into resuscitation area,heart in dangerous rhythm, potassium infusion started.Had to stay in for 2 bags intravenous potassium never felt same since.
Told gastro Dr all this,he listened and sent me for blood test( ARR) confirmed Conns disease at last!!
Immediate review by endocrinologist, nothing seen on ct scan but aldosterone levels sky high ,renin undetectable,started meds. But even though all stable now suffering from long term effects of it all, feel as if I'm on the verge of a stroke as so dizzy alot of time. A dreadful journey to diagnosis and not being believed!