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Does anyone have neuropathy related to MGUS?

Blood Cancers & Disorders | Last Active: May 14 11:39am | Replies (102)

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@loribmt

I feel your pain, @mcjohn. Making these adaptations later in our lives when we’ve been so active is quite a challenge. I’ve had to opt for lower impact physical activities but that drive to keep moving and to be our healthiest selves, is what keeps us pushing forward through adversity. Fortunately for us, we can accept, adapt and move on! ☺️. Good luck with your appts today!
My spinal MRI, Friday, didn’t show anything that should be causing my issues so I also have a consult coming up with a neurologist.
One thing I have to share is yesterday I had a very therapeutic and long awaited, deep tissue massage. It had a very profound reduction in some of my symptoms which I experience while trying to sleep. Fingers crossed this keeps up! I’ve also had great success with acupuncture sessions as well.
Have you tried massage or acupuncture?

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Replies to "I feel your pain, @mcjohn. Making these adaptations later in our lives when we’ve been so..."

Thank you, @loribmt, for the thoughtful reply. After meeting with the oncologist this week I was happy to learn that he was communicating with my neurologist and sharing thoughts on past and future testing. No, I have not tried acupuncture or massage, but I’ve done that in the past for running injuries. I will definitely explore these alternative treatments. I recognize that triathlons are now a thing of the past, but I hope to continue working out. Ironically, it’s during swim practice that my neuropathy symptoms are at their worst. Again, thank you.