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Does anyone have neuropathy related to MGUS?

Blood Cancers & Disorders | Last Active: May 14 11:39am | Replies (102)

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@mcjohn

Thank you, Lori, for the information. I had a spinal MRI yesterday and follow-up appointments with my oncologist today and neurologist next week. I hope there can be some collaboration between the two doctors. As a lifelong endurance athlete (running, swimming and cycling), the MGUS/neuropathy is very frustrating, even at age 66. I’m not sure I could live a sedentary lifestyle.

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Replies to "Thank you, Lori, for the information. I had a spinal MRI yesterday and follow-up appointments with..."

I feel your pain, @mcjohn. Making these adaptations later in our lives when we’ve been so active is quite a challenge. I’ve had to opt for lower impact physical activities but that drive to keep moving and to be our healthiest selves, is what keeps us pushing forward through adversity. Fortunately for us, we can accept, adapt and move on! ☺️. Good luck with your appts today!
My spinal MRI, Friday, didn’t show anything that should be causing my issues so I also have a consult coming up with a neurologist.
One thing I have to share is yesterday I had a very therapeutic and long awaited, deep tissue massage. It had a very profound reduction in some of my symptoms which I experience while trying to sleep. Fingers crossed this keeps up! I’ve also had great success with acupuncture sessions as well.
Have you tried massage or acupuncture?