Has anyone been diagnosed with Abdominal Wall Pain?

Hi rufus444. The Mayo Clinic Proceedings Feb 2019 posted on A.C.N.E.S. It's amazing that physicians in the U.S. don't get this, because (as you have already found out) the condition has resulted in an enormous waste of medical resources and caused much suffering to many patients, including many others posting on this site in the past. One obvious problem is that gastroenterology is the wrong speciality, hence we're all left in limbo when gastroenterologists give up on us.

Here are some case histories and reports to consider. The Mayo report is last because when I asked Mayo's Dr. Sweetser for help, I was sent me a form letter of denial. (Dr. Boelens' report is the most comprehensive)
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Protracted diagnosis of ACNES: a costly exercise. S.J. Dancer, S.G. Macpherson, A.C. de Beaux. Journal of Surgical Case Reports, 2018;9, 1-3

Chronic abdominal wall pain--A diagnostic challenge for the surgeon. Rolv-Ole Lindsetmo, M.D., M.P.H., Jonah Stulberg, M.P.H. The American Journal of Surgery, (2009) 198, 129-134

A Double-Blind, Randomized, Controlled Trial on Surgery for Chronic Abdominal Pain Due to Anterior Cutaneous Nerve Entrapment Syndrome. Oliver B. Boelens, MD, Tijmen van Assen, MD, Saskia Houterman, Marc R. Scheltinga, MD, Rudi M. Roumen, MD. Annals of Surgery Vol 257, Number 5, May 2013 845-849

Difficult differentiation of a somatic symptom disorder from anterior cutaneous nerve entrapment syndrome (ACNES): A case report. Narifumi Yokoyama, Ryousuke Shiraki, Takashi Watanabe, Makiko Shiinoki, Michihiro Nin, Taro Shimizu, Norio Yasui-Furukori and Kazutaka Shimoda. PMC Psychiatry (2019)19:394

Abdominal Cutaneous Nerve Entrapment Syndrome. Sheila Clark FCAI, Saravanakumar Kanakarajan MD FCPS FRCA FFPMRCA. Continuing Education in Anaesthesia: Critical Care & Pain, Volume 15 Number 2 2015, 60-63.

Abdominal Wall Pain: A Common Clinical Problem. Seth Sweetser, MD. Mayo Clinic Proc, February 2019:94(2):347-355. https://doi.org/10.1016/jmayocp.2018.04.03
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I check in here occasionally to see if Mayo has helped anyone yet. Sorry I (and many of us) are still suffering.

Has anyone experienced CAWP- Chronic Abdominal Wall Pain? I have had this discomfort & swelling on my right side for 4 + months. I have had MRI, Cat scans, colonoscopy, exploratory surgery, bloodwork and all I hear from the doctors is “they don’t see anything “. I read it is one of the most frequently mis-diagnosed ailments.

Hello spirit22,
It sounds very much like you are suffering from Abdominal cutaneous nerve entrapment syndrome or ACNES. There are 2 ways to identify. One is by trigger point shots to the inflamed area and second the Carnett test. You can get much information by googling ACNES and Carnet test (best on YouTube). I was fortunate to find a surgeon in Phoenix who performed Robotic Laparoscopic Surgery severing the effected nerves. Was an outpatient and went home that afternoon cured. I’d be happy to discuss further if you are interested. Jeff

Has anyone experienced CAWP- Chronic Abdominal Wall Pain? I have had this discomfort & swelling on my right side for 4 + months. I have had MRI, Cat scans, colonoscopy, exploratory surgery, bloodwork and all I hear from the doctors is “they don’t see anything “. I read it is one of the most frequently mis-diagnosed ailments.

Dr Eric Boyd, Phoenix gave me 4 rounds of trigger point. First worked about a week then less after until 4th did nothing.

Hello spirit22,
It sounds very much like you are suffering from Abdominal cutaneous nerve entrapment syndrome or ACNES. There are 2 ways to identify. One is by trigger point shots to the inflamed area and second the Carnett test. You can get much information by googling ACNES and Carnet test (best on YouTube). I was fortunate to find a surgeon in Phoenix who performed Robotic Laparoscopic Surgery severing the effected nerves. Was an outpatient and went home that afternoon cured. I’d be happy to discuss further if you are interested. Jeff

Hi Jeff,
I too was diagnosed with ACNES on my intercostal area..nerves 8-11 were isolated. The pain management doctor at UF Shands in Gainesville, Florida did 4 steroid blocks on both left and right side which lasted for approximately 2 months.
He was also doing 2 test blocks on both sides of my neck and last Monday the numbing medication went into other areas around the nerves in 2 areas the doctor was numbing and paralyzed my left arm, neck, head and partially right arm. I could not move my left arm or head for 5-6 hours. I was sent by ambulance to Shands ER for stroke follow up. Thank God all it turned out to be was the numbing medication seeped into areas it wasn't intended for.
Now my doctor is hesitant to do Radio Frequency Abalation on my intercostal area..saying my body is too sensitive to needles.
I live in Central Florida and have not found a surgeon that surgically severs the nerves.
What kind of surgeon did you find and where are you located? How were able to locate him?
I have had ACNES in my abdominal area for over 4 1/2 years. I am back to severe, debilitating pain since the steroid blocks wore off. I am only able to get up and move around for 15-20 minutes before the pain is so bad that I have to either sit or lay down.
Any information you could give me to find a surgeon would be greatly appreciated.
Thank you,
Victoria Sarosy

Hi VLV,
I had abdominal cutaneous laparoscopic surgery (procedure) performed on 9/2/21 by Dr Thomas Gillespie, surgeon at St Joseph's Medical Center in Phoenix, AZ. Long story how I found be him but it was after an extensive search. Dr Gillespie severed my T8, T9 and T10 nerves. I walked out of the hospital that afternoon cured. He is an amazing caring physician. If you'd like to discuss further please private message me and we can set up a discussion. I have referred numerous patients to him with all being cured of this horrible painful syndrome.
Jeff Groudan