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"Rubbery" Legs?

Neuropathy | Last Active: Jun 1, 2023 | Replies (107)

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@ssjohns

I concur Ray. I totally avoid steps when possible. I haven’t been in my backyard for ages. There is a deck off my back door with 8 steps going down to the yard. It’s too dangerous to maneuver. I have trouble with the 2 inch drop down to my porch off the front door. To leave my house I need a transport, which can be very expensive. So far I’ve been able to manage alone, but fear that day may be coming. I tried for many years to find out what is wrong going from doctor to doctor, having test after test, bloodwork after bloodwork to no avail until December. At this point, I am well past the cane stage and need my Rollator all the time and the wheelchair on occasion. I was also extremely discouraged when I was searching Lyrica and Cymbalta and discovered there are some serious side effects and there may be a class action lawsuit starting.

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Replies to "I concur Ray. I totally avoid steps when possible. I haven’t been in my backyard for..."

It is so easy to think it is all so very discouraging. Even though I've done the crazymaking go-around of different doctors and different rests (perhaps not nearly as many as others have), I'm still refusing to give up. If I can only manage to slow down the progression of my PN, I'll be a happy camper. Steps without handrails have been my bugaboo from the very start. In fact, my dread of "naked" steps was the reason I quit acting. On the evening of our first rehearsal (three years ago), I took the set designer aside and asked if he'd make sure that any steps that he might be planning would have handrails. That night driving home, I thought to myself, "That's it, Ray! Never before have you asked for an accommodation to be made in a set. It's time to retire!"