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Concerned about medications for ET JAK2

Blood Cancers & Disorders | Last Active: Mar 23 8:43pm | Replies (15)
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@rhino123

I have ET, platelets over one-million. DR is putting me on Jakafii. Has anyone else been on this med? What were your side effects? Thanks,, Worried

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Replies to "I have ET, platelets over one-million. DR is putting me on Jakafii. Has anyone else been..."
edb1123 | @edb1123 | Apr 26, 2023

I have been on Jakafi since Aug., 2022. I started at 10 mg/day but then my doctor increased it to 20 mg/day and I started having side effects. I had pain in my hamstring muscles and hips. I asked him to reduce the dosage and the pain went away.

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