Sjogerns and gastroparesis

Posted by cpd54 @cpd54, Apr 24, 2023

Which comes first, Sjogerns or gastroparesis? I’ve had symptoms of both all my life (looking back). I was diagnosed with gastroparesis in 2014 but basically did nothing for it…then in 2022 was diagnosed with SS.

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Becky, Volunteer Mentor | @becsbuddy | Apr 24, 2023

@cpd54 What finally got your doctors to give you a diagnosis? Do they also know about the gastroparesis?
https://sjogrens.org/blog/2021/tips-for-gastrointestinal-gi-complications-sjogrens#:~:text=Gastroparesis%20(delayed%20gastric%20emptying)%20occurs,if%20present%2C%20can%20be%20treated.
Maybe you can tell me a little more about how you’ve coped all this time/

cpd54 | @cpd54 | Apr 24, 2023

On the gastroparesis I had an endoscopy done. I had to figure that out how to handle gastroparesis on my own. I don’t do well on a “healthy” diet. It has to much fiber. But I seem to be able to handle raw fruit and salads okay. I chew my food very well, don’t eat after 6, stay well hydrated.when I have a gastro flair, I do a day or two of liquids then soft low fiber food for a day or two then slowly go back to my normal eating while trying to figure out what caused the flair up, egg rolls this time!! The SS I’m still figuring out. In fact it was that article you shared that made me connect the two.

willows | @willows | Apr 25, 2023

I have both conditions. The gastroparesis was identified first.

Becky, Volunteer Mentor | @becsbuddy | Apr 25, 2023

In reply to @willows "I have both conditions. The gastroparesis was identified first." + (show)

@willows Are you able to manage both conditions without too much trouble? @cpd54 has said that she’s still trying to figure out Sjögren’s syndrome. Maybe you have some good tips for her. We all need to help each other—autoimmune diseases are complicated and no fun! Thank you!!

katyt | @katyt | Oct 27 6:52pm

I found out I had Sjogrens first then about 8 mos later was diagnosed with gastroparesis. I’m also extremely gluten sensitive so that’s a big challenge for me too!