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Does anyone have neuropathy related to MGUS?

Blood Cancers & Disorders | Last Active: May 14 11:39am | Replies (102)

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@loribmt

Hello @mcjohn, We have other members in our forum who have MGUS with neuropathy. There is a correlation between the two. I a good article online which may help you in understanding the possibility of the neuropathy in relation to your blood disorder.

Here’s a link to the discussion in the forum with members @gingerw @circawdm. @quarksunite and others. Don’t hesitate to pop into the conversations!
https://connect.mayoclinic.org/discussion/mgus-neuropathy/
This article is worth reading. You do not have Multiple Myeloma, but MGUS can sometimes progress to that disease. This article is from a MM online support site and I felt the information would be useful for you.
https://www.mymyelomateam.com/resources/mgus-and-peripheral-neuropathy
You have quite a bit of medical excitement going on right now. Wishing you all the best with your upcoming tests. Is there anything else I can help you with?

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Replies to "Hello @mcjohn, We have other members in our forum who have MGUS with neuropathy. There is..."

Thank you, Lori, for the information. I had a spinal MRI yesterday and follow-up appointments with my oncologist today and neurologist next week. I hope there can be some collaboration between the two doctors. As a lifelong endurance athlete (running, swimming and cycling), the MGUS/neuropathy is very frustrating, even at age 66. I’m not sure I could live a sedentary lifestyle.