Connect
← Return to Does anyone have neuropathy related to MGUS?
Discussion
Does anyone have neuropathy related to MGUS?
Blood Cancers & Disorders | Last Active: May 14 11:39am | Replies (102)Comment receiving replies
I am new to this forum due to a recent MGUS diagnosis that revealed itself after an appointment with a neurologist. I’m finally back to the neurologist after several months of appointments and tests geared toward my blood disorder and myriad other possible issues that surfaced via the full body PET scan (liver lesions, brain and heart calcification, etc.), but I digress. I have a spine MRI and an EMG scheduled next week. My questions is whether it’s possible that MGUS could be causing the neuropathy. What is the experience of other forum member with MGUS?
Replies to "I am new to this forum due to a recent MGUS diagnosis that revealed itself after..."
I have Trigeminal Neuralgia. MGus was found following a request for Blood Tests while seeing my neurologist. Nothing exciting, just watch and wait.
GIND5009
Connect
Hello @mcjohn, We have other members in our forum who have MGUS with neuropathy. There is a correlation between the two. I a good article online which may help you in understanding the possibility of the neuropathy in relation to your blood disorder.
Here’s a link to the discussion in the forum with members @gingerw @circawdm. @quarksunite and others. Don’t hesitate to pop into the conversations!
https://connect.mayoclinic.org/discussion/mgus-neuropathy/
This article is worth reading. You do not have Multiple Myeloma, but MGUS can sometimes progress to that disease. This article is from a MM online support site and I felt the information would be useful for you.
https://www.mymyelomateam.com/resources/mgus-and-peripheral-neuropathy
You have quite a bit of medical excitement going on right now. Wishing you all the best with your upcoming tests. Is there anything else I can help you with?