← Return to CLL leukemia: Just diagnosed, what can be done?

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@dorphy82

Greetings. Appreciate having this forum for comment and assistance. My initial CLL diagnosis was in 2014 when I was treated with Mabthera which affected my leg veins. I am 82. Started treatment again in January 2022 and resumed Mabthera treatment and now have peripheral neuropathy (feet/toes numb). My recent CT scan reveals there is interval increase in size of the conglomerate, large mesenteric nodal mass complex in the central abdomen. Pathological inguinal lymph adenopathy. Oncologist has delayed further treatment until July 2023. Would appreciate any comment or advice as to possible treatment . Thank you!

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Replies to "Greetings. Appreciate having this forum for comment and assistance. My initial CLL diagnosis was in 2014..."

Hello @dorphy82, Welcome to Mayo Connect…as you can see you’re not alone in your journey with CLL. We have several members who are along the same path with you.
Our forum is made up of members just like you who come together for support and encouragement, so we can’t diagnose or offer treatments.

The Mabthera you were taking appears to be the standard treatment for CLL in Europe so I’m not sure why your doctor has delayed the therapy. It may be something as simple as a rest period to allow your side effects to subside.

Have you been able to ask your doctor why there is a delay?