Newly Diagnosed: FIGO 2 Uterine Cancer: What does this mean?

Thank you, Helen. What feelings have you had since your hysterectomy? Were you tested for Lynch Syndrome? I feel like my nerve endings are healing - random weird tingling and pain, headaches, but I am hopeful it will pass as I heal.

@gratefulcat I was tested for Lynch Syndrome and it was negative. I also was tested for BRCA1 and BRCA2 and those were negative.

Emotionally I felt grateful and blessed after my hysterectomy because the endometrioid adenocarcinoma was Stage 1a and caught early. Physically I was fatigued for about two weeks and the fatigue lessened each day. I stayed home and did what I felt I could do. I took naps as I’d had general anesthesia and so I knew the fatigue was normal. My surgeon reminded me that while I had just a few small incisions on the outside but the surgery was endoscopic that I still had the same amount of healing internally that a patient would have with open abdominal surgery. I would say that I felt back to my usual energy in about 3 weeks.

Does this answer your questions? Do you other questions?

Recently diagnosed with Endometrial Cancer, grade 1. Scheduled for Robotic Hysterectomy soon. What do I have to look forward to with this type of surgery?

@melhen -

I am so sorry to hear about your diagnosis. Last month, I went through the same thing with FIGO grade 2 and Stage 1A cancer. I was surprised at how easy the robotic hysterectomy was. I went home the same day as the surgery and walked around and climbed stairs the next day.
The hysterectomy recovery has been easy. I was put on blood thinners for 30 days, which I had a hard time tolerating, but it's important to prevent blood clots with this type of cancer. During the surgery, they will do a pelvic washing, and if it comes back positive, they will most likely recommend brachytherapy/radiation. Let me know if there is anything else I can answer for you. Take good care

Welcome to out support group. Cancer is a word no one wants to hear the day they receive the diagnosis from the doctor. Now that your surgical procedure is scheduled how do you feel?

I was diagnosed with endometrioid adenocarcinoma FIGO 1. Once I saw the GYNOncologist and there was a plan in place I felt my spirits lift and was less anxious. I had a robotic laparoscopic hysterectomy and pathology assigned Stage 1a. I was released from the hospital the same day and just felt some fatigue after the procedure. There a few small incisions in my abdomen that quickly healed. It took longer for me to heal on the inside. About 4 weeks.

What other questions do you have? Do you have a date for your hysterectomy?

April 24
Just what to expect before and after surgery. I know everyone is different but some general things I might expect. I’m 69 so I’m sure the age of the patient makes some difference with recovery and all. About how long does the robotic procedure take? And that too I’m assuming depends on the surgeon.
I read somewhere a person said she used a small pillow afterwards if she had to cough.

@melhen April 24. That is coming up very soon.

I had my surgery at Mayo Clinic’s Methodist Hospital in Rochester, Minnesota. Since I had general anesthesia and woke up in recovery I’m not sure how long the surgery was. I checked in to the hospital very early at about 6 am. I was prepped for surgery by a wonderful nurse who educated me on what to expect before and after the surgery. I think I went to the pre-op room at about 10 where the doctors talked with me and the IV was started. I’m thinking I was taken to the OR at about 11 am. I woke up in recovery around 1 or or 2 pm. Once I was awake and could walk then my partner took me back to our hotel.

I did have some pain after surgery because carbon dioxide is introduced to inflate the pelvic area where the surgeon is working for laparoscopic surgery. That carbon dioxide remains in the body for awhile but that pain was gone by the next morning. I was not sent home with any pain meds and I didn’t need them. I was tired and a little sore in my abdomen for a few days after surgery.

Everyone on the cancer team, including the prep and pre-op explained everything they needed to do before it happened. I am generally a very anxious person and I can say with the care and attention that I received I was not anxious. If surgery can be a positive experience under the circumstances then it certainly was for me.

Where will you be going for your surgery?

Hi Melhen -

My surgery took about 2 hours, and then I spent several hours in recovery before I could go home. They will want to make sure you can pass urine before they discharge you.

I bought one of these before my scheduled surgery, so I would have it when I got home. It helped a lot with getting comfortable.
https://www.amazon.com/Ganaver-Sleeping-Orthopedic-Triangle-Elevation/dp/B0BR15SW5Z/ref=sr_1_13_sspa

You should recover quickly in terms of pain, but adhere to the restrictions your doctor gives you. Even though the five incisions are tidy, there is a lot of healing to be done. I was up walking laps in the hospital 12 hours after my surgery, but still had occasional spotting 12 weeks out!

Yes, last July had a complete hysterectomy for endometrial cancer. After the biopsy they said FIGO stage 1 or 2. After the surgery I was diagnosed Stage 1B Grade 2. Had brachytherapy. My bowel was wrapped my ovary due to endometriosis so I was in surgery a bit longer and had to spend the night. I’m 67 years old and the surgery and recovery went great. I think I took Tylenol for a few days, but felt great. Good luck abd hope everything goes well!