PMR and exercise: What helps you?

Posted by jcaffrey47 @jcaffrey47, Jul 17, 2021

We are told that we have to stay active but what does that mean? This issue became very real for me when I attempted to swim the crawl stroke in the swimming pool. I was feeling pretty good at the time. The prednisone had kicked in and I swam the equivalent of two laps. The next day my shoulders were on fire and I was suffering a full flare; my first. Maybe everyone reading this will say that I was foolish to do any exercise that involve my shoulders and that I should limit my exercise to other parts of the body like walking or maybe biking. Let’s start a dialogue and find out what exercises work for all of us.

Interested in more discussions like this? Go to the Polymyalgia Rheumatica (PMR) Support Group.

@bb1

Hi everyone.I am 83 and have had PMR for 2 years. A bit of a background. Always active and was fine until 3 covid shots and one shingle shot,then developed PMR,in neck shoulders and arms.
I was placed on 20 mgs. 1 month.
15 mgs 1 month.
10 mgs 10 months,then reduce by 1 mg per month.
Reduced eventually to 0.Then had flare,am back on 5.
At 5 mgs am feeling great,have been told by Dr. This is most likely where I will be to eliminate the pain.
I do exercise with light weights,shoulder shrugs,meditation and walks.
I will eventually try dropping 1 mg but am not in a rush.
Please stop trying to get of Prednisone to fast and do not take ibuprofen with it.
Don't mean to rant.Cheers from Calgary.

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I never had an immune problem my whole life. Then I received a Moderna mRNA vaccine covid shot. After my booster I immediately broke out in shingles then a year later PMR. No one in my family history has had PMR or rheumatism. My 25 year old grand daughter also suffered shingles after her booster.

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I just came back from a week in Phoenix where I walked quite a bit and even hiked a short mountain trail feeling good the whole time. After a delayed flight home to Alberta and a long day and night with too much sitting, I can hardly move today. Missing that heat.
I hope this is a one day flare-up. My partner of 13 years passed shortly before I went so stress may be a contributing factor. I am mentally motivated to beat this disease and live a more active life.

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@artur

I never had an immune problem my whole life. Then I received a Moderna mRNA vaccine covid shot. After my booster I immediately broke out in shingles then a year later PMR. No one in my family history has had PMR or rheumatism. My 25 year old grand daughter also suffered shingles after her booster.

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Same thing with me. Never had any immune problems but 7 days after my second Moderna booster, my arms, shoulders and neck were killing me. Had to wait three months to see a rheumatologist who confirmed it was PMR. I think in the future, they will eventually find a link between the vaccines and some autoimmune diseases for a few unlucky people like us.

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@sashakay

These posts are so helpful. I have been off of prednisone now since January, and feeling really amazing. I wanted to strengthen up a bit and went to physical therapist who gave me some exercises to do. They helped for a week or two and then suddenly I went into a flareup. I backed off and things settled down so started back again, very gently, but went into a flare up. I had been doing some very gentle stretches before that with no negative affects so I went back to those and oh my, my body loves it! If I'm allowed to, I would like to suggest Justin Agustin (on FB and YouTube. He has been a lifesaver, especially for those of us of a certain age who want to stay "in the flow". When my body is feeling tight and scared, I put on Harry Styles and dance my little buns off around the house. 79 and caused the Amazon delivery man a few laughs!

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thank you...will give it a try!

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First suggestion is find a good physical therapist. I start the day with a series of stretches.
Alternate using muscle groups. Swim Pilates or Yin yoga is good for shoulders. Walking and
biking for lower muscles.

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I bought one of the cheapest vibration plates on Aamazon. It came yesterday and I used it for fifteen minutes. Afterwards, I felt great, and this morning, for the first time in weeks, I could feel no PMR effects at all. It's too early to tell how useful it will be, but at the very least, it provides good exercise without taking a step!

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@pkalkstein

I bought one of the cheapest vibration plates on Aamazon. It came yesterday and I used it for fifteen minutes. Afterwards, I felt great, and this morning, for the first time in weeks, I could feel no PMR effects at all. It's too early to tell how useful it will be, but at the very least, it provides good exercise without taking a step!

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I want to try it. Any brand or other product info? I went online and saw so many features. Did you product have variable speeds? What speed or power did you use for 15 minutes?

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Yes, there are so many brands. I think they all do the same thing and have many of the same features. I'm sure the more expensive ones last longer, but I didn't know if it would be useful, so went low. The one I bought actually came from Walmart: Best Choice Products Vibration Plate Exercise Machine Full Body Fitness Platform w/ Resistance Bands - White. It was cheaper than the price listed today. There are variable speeds and you control speed and time with a remote. I am using a low speed which seems very helpful. It is really helping my achilles tendinitis as well.

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@pkalkstein @jfannarbor and others, There is another discussion that might be helpful on whole body vibration even though it's not part of the PMR group. I had previously purchased an Eilison Bolt vibration plate but had to stop using it due to the feeling of my eyes being jarred around - https://www.amazon.com/EILISON-Vibration-Plate-Exercise-Machine/dp/B0928KYX4T?th=1. I think the device I bought would be considered a low frequency vibration plate which I think could be bad if you have osteoporosis and are trying to build bone strength.

--- Whole Body Vibration for Osteoporosis: https://connect.mayoclinic.org/discussion/whole-body-vibration-for-osteoporosis/

@tsc referenced a few Margaret Martin articles and videos that might provide some insight into the devices, here are a couple of her YouTube videos:
--- 2023 Research Update on Whole Body Vibration Therapy: https://youtu.be/Wz4DQw2DdA0 (3:09 minutes)
--- Do Vibration Platforms Increase Bone Density?: https://youtu.be/JHx1U_KFYkU (1:25:28)

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@johnbishop

@pkalkstein @jfannarbor and others, There is another discussion that might be helpful on whole body vibration even though it's not part of the PMR group. I had previously purchased an Eilison Bolt vibration plate but had to stop using it due to the feeling of my eyes being jarred around - https://www.amazon.com/EILISON-Vibration-Plate-Exercise-Machine/dp/B0928KYX4T?th=1. I think the device I bought would be considered a low frequency vibration plate which I think could be bad if you have osteoporosis and are trying to build bone strength.

--- Whole Body Vibration for Osteoporosis: https://connect.mayoclinic.org/discussion/whole-body-vibration-for-osteoporosis/

@tsc referenced a few Margaret Martin articles and videos that might provide some insight into the devices, here are a couple of her YouTube videos:
--- 2023 Research Update on Whole Body Vibration Therapy: https://youtu.be/Wz4DQw2DdA0 (3:09 minutes)
--- Do Vibration Platforms Increase Bone Density?: https://youtu.be/JHx1U_KFYkU (1:25:28)

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Hi @johnbishop, I think the cheaper whole body vibration plates, in the range of $150.00, are high intensity vibration exercisers that Margaret Martin has noted can be dangerous. The Low Intensity Vibration plates, developed by NASA and a Dr. Rubin, for improving the astronauts' bone density, sell for a few thousand dollars. The Marodyne LIV is one of these.

I used the Eilison Bolt for nine months, but after reading Margaret Martin's articles and listening to her podcasts, I gave it away.

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