← Return to Cirrhosis of the Liver: What to expect when waiting for a transplant?

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@lcd

I have congenital hepatic fibrosis. This disease was diagnosed 15 years ago, and has led to many different procedures such as TIPS and emergency room visits with bacteria infections. I did at one time enjoy a glass of wine or a cold beer after working in the yard, but obviously no longer. YOU are not alone in this journey. The mental aspect will wear on you or the fear of not knowing when the next emergency room visit will happen. I try and stay focused on the positives, thankful to be here and contributing to society -working, family, and friends. The transplant may some day come, although my MELD is low, but we must continue to be as healthy as possible-physically and mentally.

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Replies to "I have congenital hepatic fibrosis. This disease was diagnosed 15 years ago, and has led to..."

How was your TIPS procedure? Did it help you? My husband has cirrhosis and decompensated liver. His ascites is bad I has hoping a TIPS procedure would help him. The last draining they got 8 liters. Thank you