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Diagnosed with both multiple myeloma and amyloidosis

Blood Cancers & Disorders | Last Active: Jan 16 8:52pm | Replies (20)
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@cemeterygal01

I have both. I have an oncologist locally where I get my treatments (Peacehealth cancer center) and I had a consultation/2nd opinion at Fred Hutch in Seattle.
I see my dr once a month before treatment. I just saw her yesterday.

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Replies to "I have both. I have an oncologist locally where I get my treatments (Peacehealth cancer center)..."
Ginger, Volunteer Mentor | @gingerw | Apr 23, 2023

@cemeterygal101 Wow, that is quite the combination to have at the same time. It seems like the two are juxtaposed to each other, and I am very interested to hear what your team will talk to you about for treatment going forward.

In my situation, I was first diagnosed with MGUS [monoclonal gammopathy of unspecified significance]in 2017, advanced to SMM [smoldering myeloma in 2018] and then multiple myeloma in 2019. All of these were way ahead of the curve time-wise for advancement, seeing that people usually go for years if not decades before moving to the next level. There were many tests including bone marrow biopsy, CT scans, MRIs and bloodwork. I have been on oral chemo since August 2021.
Ginger

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