Connect
← Return to Cirrhosis of the Liver: What to expect when waiting for a transplant?
Discussion
Cirrhosis of the Liver: What to expect when waiting for a transplant?
Transplants | Last Active: Aug 16, 2023 | Replies (104)Comment receiving replies
I just had an MRI ELASTOGRAPHY and it showed stage 4 Fibrosis. Dr's PA called and said you need to see Hepatologist. The Hepatologist was away and I am scared also. I read this is a terminal illness. I live in NY. I have reached out to another hospital and the earliest date is May 26th. I am also besides myself. I have several autoimmune disorders, GI, and Neurological. I had my gallbladder removed and I read this can cause scarring of the liver. I also wrote to the Mayo Clinic in Florida to see if they can help. Awaiting a call back. I have terrible left sided pain. My mom died of Colin Cancer. I'm really scared. Try and see if any other good hospital can rake you. My liver enzymes have always been slightly high. Prior CT scan 2017 showed possible Chirrosis, but said to correlate with liver enzymes. My liver should have been checked yearly This is a silent disease. I'll pray for you
Replies to "I just had an MRI ELASTOGRAPHY and it showed stage 4 Fibrosis. Dr's PA called and..."
My old pcp dropped the ball. With me I was having consistent elevated liver tests. Only when they were really high was I sent to liver doctor. I need a new one. My current pcp gave me a referral to go see him. I need to go. I hope it turns out okay with you.
To mylifebe4you. Get going on a hospital that can take u immediately.transplant 10/20/20 Mount Sinai in n.y. they were wonderful. Fabulous.smart doctors had a whole team taking care of me.social worker.nutrisionist.other doctors.was a god send. U have a long road to go. I also did not do drugs.no hepatitis.no abuse of liquor.no family member. Plz keep looking for someone to take u very soon.there are symptoms that can crop up before surgery and can dangerous .I feel for u.anything I can do let me know.
Connect
Call Mount Sinai, when we were looking at transplant hospitals in NY, they were able to accommodate us with an appointment quickly. We know someone who had a liver transplant there and they were very happy with the care they gave. We have a home in Florida and decided Mayo would be better for us. We waited about a month for our first appt.