I started with joint pain back in 2019. I would come home from work and once I sat down, I didn't want to get up again. It was like my whole body (especially my ankles) just froze up. They would be fine again after I got moving a bit, but froze again every time I stopped or sat down. My GP doctor diagnosed it as PMR, even though the symptoms didn't match and put me on steroids. I felt great and could move again, but I gained a lot of weight. After being on them for about a year and a half, I wanted to get off of them. The GP sent me to a rheumatologist who put me on hydroxychloroquine to help me off the steroids. Unfortunately, the hydroxychloroquine was messing with my breathing to the point that I had to see the pulmonologist at a major medical center. (My breathing is fine now.) At least the rheumatologist did the blood work which diagnosed my MGUS. But after my experience with the hydroxychloroquine, I went off of the meds and quit that rheumatologist. My pain is now returned, but a bit different. It is mostly knees, shoulders, elbows, hands, and wrists, sometimes the top of my forearm, but it is intermittent and of varying degrees. Some days I want to cry and others I barely notice it. At my last check-up, I asked my hematologist if the MGUS could be part of what is causing the pain. His reply was that he did not think the MGUS was at a stage where it would cause the pain. Recently, I was told by an Osteo-PA and a physical therapist that I have a lot of "knots" in my ligaments in my forearms. I can feel them under my skin and they do hurt. I have two upcoming appointments regarding trying to get rid of the pain. One is with a weight-loss physician to help get off the weight from the steroids and move to a more natural diet. The other is a new rheumatologist who is supposed to be more "investigative" than my original to find the true cause of the pain. Btw - I have always been slightly anemic. It seems to be my norm, but I do require iron infusions from time to time. So to answer your original question - yes, there are others of us out here. We just try to keep going and do the best we can from day to day.