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What’s the science on diet and MGUS/SMM?

Blood Cancers & Disorders | Last Active: Apr 23, 2023 | Replies (53)

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@cheft

I am not knowledgeable about Waldenstrom’s but I live in Dayton MN and have SMM Smoldering Myeloma. Diagnosed a couple weeks ago. I am being seen at Virginia Piper Cancer Center at Abbott Hospital in Minneapolis. I am getting a second opinion at Mayo in Rochester as to the watch and wait or possibly get into a trial study. The Mayo has a lot of trial studies. I suggest at least looking at the trials and speaking to them. Never hurts.

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Replies to "I am not knowledgeable about Waldenstrom’s but I live in Dayton MN and have SMM Smoldering..."

I did exactly that. Started my chemo last Thursday. No bone lesions so far, but high-risk active myeloma based on DNA and blood tests. Very fatigued, but very optimistic. Two days after starting chemo no noticeable side effects. No nausea. So far so good.

I moved to AZ to be closer to Mayo. It was either Rochester or Phoenix and I have an orange tree here and no snow.