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Mentor

What’s the science on diet and MGUS/SMM?

Posted by Patty, Volunteer Mentor @pmm, Sep 19, 2022

Is there any evidence that progression of MGUS or SMM is slowed by dietary changes? Avoidance of types of food? Addition of specific spices to the diet?

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ChefT | @cheft | Apr 22, 2023
In reply to @jackir "I was just diagnosed with Waldenstrom’s and my first appointment at Mayo in Phoenix is the..." + (show)
@jackir

I was just diagnosed with Waldenstrom’s and my first appointment at Mayo in Phoenix is the second week in November. I live in the Phoenix area, originally from Sioux Falls, South Dakota and went to University of Minnesota so I am more familiar with Mayo in Rochester. Should I try to get an appointment in Rochester? I have always heard the only place to go is Rochester. I would appreciate any feedback.

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I am not knowledgeable about Waldenstrom’s but I live in Dayton MN and have SMM Smoldering Myeloma. Diagnosed a couple weeks ago. I am being seen at Virginia Piper Cancer Center at Abbott Hospital in Minneapolis. I am getting a second opinion at Mayo in Rochester as to the watch and wait or possibly get into a trial study. The Mayo has a lot of trial studies. I suggest at least looking at the trials and speaking to them. Never hurts.

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sarunfeldt | @sarunfeldt | Apr 22, 2023
In reply to @cheft "I am not knowledgeable about Waldenstrom’s but I live in Dayton MN and have SMM Smoldering..." + (show)
@cheft

I am not knowledgeable about Waldenstrom’s but I live in Dayton MN and have SMM Smoldering Myeloma. Diagnosed a couple weeks ago. I am being seen at Virginia Piper Cancer Center at Abbott Hospital in Minneapolis. I am getting a second opinion at Mayo in Rochester as to the watch and wait or possibly get into a trial study. The Mayo has a lot of trial studies. I suggest at least looking at the trials and speaking to them. Never hurts.

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I did exactly that. Started my chemo last Thursday. No bone lesions so far, but high-risk active myeloma based on DNA and blood tests. Very fatigued, but very optimistic. Two days after starting chemo no noticeable side effects. No nausea. So far so good.

I moved to AZ to be closer to Mayo. It was either Rochester or Phoenix and I have an orange tree here and no snow.

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Mentor
Patty, Volunteer Mentor | @pmm | Apr 23, 2023

I hope with you for a good outcome. Let us know how this goes for you. It sounds like the chemo is manageable. That’s excellent.
Patty

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