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What’s the science on diet and MGUS/SMM?

Posted by Patty, Volunteer Mentor @pmm, Sep 19, 2022

Is there any evidence that progression of MGUS or SMM is slowed by dietary changes? Avoidance of types of food? Addition of specific spices to the diet?

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ChefT | @cheft | Apr 22, 2023
In reply to @jackir "I was just diagnosed with Waldenstrom’s and my first appointment at Mayo in Phoenix is the..." + (show)
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I was just diagnosed with Waldenstrom’s and my first appointment at Mayo in Phoenix is the second week in November. I live in the Phoenix area, originally from Sioux Falls, South Dakota and went to University of Minnesota so I am more familiar with Mayo in Rochester. Should I try to get an appointment in Rochester? I have always heard the only place to go is Rochester. I would appreciate any feedback.

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I am not knowledgeable about Waldenstrom’s but I live in Dayton MN and have SMM Smoldering Myeloma. Diagnosed a couple weeks ago. I am being seen at Virginia Piper Cancer Center at Abbott Hospital in Minneapolis. I am getting a second opinion at Mayo in Rochester as to the watch and wait or possibly get into a trial study. The Mayo has a lot of trial studies. I suggest at least looking at the trials and speaking to them. Never hurts.

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sarunfeldt | @sarunfeldt | Apr 22, 2023
In reply to @cheft "I am not knowledgeable about Waldenstrom’s but I live in Dayton MN and have SMM Smoldering..." + (show)
Profile picture for ChefT @cheft

I am not knowledgeable about Waldenstrom’s but I live in Dayton MN and have SMM Smoldering Myeloma. Diagnosed a couple weeks ago. I am being seen at Virginia Piper Cancer Center at Abbott Hospital in Minneapolis. I am getting a second opinion at Mayo in Rochester as to the watch and wait or possibly get into a trial study. The Mayo has a lot of trial studies. I suggest at least looking at the trials and speaking to them. Never hurts.

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I did exactly that. Started my chemo last Thursday. No bone lesions so far, but high-risk active myeloma based on DNA and blood tests. Very fatigued, but very optimistic. Two days after starting chemo no noticeable side effects. No nausea. So far so good.

I moved to AZ to be closer to Mayo. It was either Rochester or Phoenix and I have an orange tree here and no snow.

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Mentor
Patty, Volunteer Mentor | @pmm | Apr 23, 2023

I hope with you for a good outcome. Let us know how this goes for you. It sounds like the chemo is manageable. That’s excellent.
Patty

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jetcat1950 | @jetcat1950 | May 2 2:18pm

My son has small cell in his lung and liver- I would like having information as it is available

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Colleen Young, Connect Director | @colleenyoung | May 15 7:18pm
In reply to @jetcat1950 "My son has small cell in his lung and liver- I would like having information as..." + (show)
Profile picture for jetcat1950 @jetcat1950

My son has small cell in his lung and liver- I would like having information as it is available

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Hi @jetcat1950, do I have this right? Your son has small cell lung cancer?

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googi | @googi | Aug 19 11:43am
In reply to @lovelydavina "I'm not sure if there is any evidence on any specific diet related to Monoclonal gammopathy..." + (show)
Profile picture for lovelydavina @lovelydavina

I'm not sure if there is any evidence on any specific diet related to
Monoclonal gammopathy of undetermined significance (MGUS), which is what I have.
However I have been a vegan for 20 years and about the time I was diagnosed with magus, (approx 8 years ago), I had been eating a very lot of pure peanut butter on a regular basis. Then I read peanuts are actually very bad for you and can even increase proteins in your blood. I since stopped and now only moderately eat almond butter. My doctor said she really didn't think it was related. My yearly blood tests now are always with low enough levels, but the protein is still present, but still posing no threat. I really don't have any other major issues aside from my normal allergies, my weight is low and I'm healthy. I feel that being a vegan, eating lots of green asian vegetables, mushrooms, non gluten breads and rice, (I have Celiac), and drinking teas is the way to stay healthy and to live a long life. Hopefully that will continue to be the case.

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This is the first I’ve heard about pure peanut butter being unhealthy and possibly increasing protein in blood. Do you have a reference for that statement? I eat peanut butter regularly and almond butter too.

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