Connect
← Return to Recommendation for PKD doctor
Discussion
Comment receiving replies
Thank you all for the replies. I have checked out PKD foundation and its sites already. Read everything on Mayos website on pkd.
Also I searched for pkd doctors at Mayo. It seems Dr. Fouad T. Chebib at Mayo Jacksonville is the only specialist who works with novel treatments for pkd and its complications. The other doctors who listed pkd as their interests don’t seem to have that much research work on pkd. Don’t know if the best doctor for pkd is Dr. Chebib or all the nephrologists at every Mayo site share the same information on special treatments. Aspiration and sclerotherapy, Jinrac, kidney transplant are the most common treatments. Maybe there’s genetic therapy trial? Or some other special therapy?
Replies to "Thank you all for the replies. I have checked out PKD foundation and its sites already...."
Connect
@kyokunn33, novel therapies for PKD and its potential complications are researched at Mayo Clinic. You're right that Dr. Chebib is a leader in this area and works with his fellow nephrologists at all Mayo Clinic sites.
If you're interested in learning about active research and potential trials to join at Mayo Clinic, you can contact the Mayo Clinical Trials office. You can conduct your own search here:
Clinical Trials https://www.mayo.edu/research/clinical-trials
Of call them at:
Phone: 800-664-4542 (toll-free)
Contact form: https://www.mayo.edu/research/forms/clinical-trials
Kyokunn, may I ask what treatments you've had? What complications are you currently dealing with?