← Return to Low Platelets: Diagnosis to be confirmed

Discussion

Low Platelets: Diagnosis to be confirmed

Blood Cancers & Disorders | Last Active: May 22 2:39am | Replies (87)

Comment receiving replies
@lulujuice

Hello auntkk,
I have TTP and believe it differs from ITP. When my platelets drop it is because my body stops making platelets due to an enzyme shutting down . The enzyme is AdamsT13 that completely shuts down and it is like my body attacks itself not producing platelets. My first episode was in 2009, I have reoccurring TPP since I have had 5 (2009,2014,2016,2018,2022)total episodes. The first time my platelets dropped to 6,000. I was treated with Rituximab x4 and prednisone the first 4 episodes. The Drs usually test for my level of AdamsT13. I also have Plasma Pharisees (frozen plasma exchange) daily while in the hospital. My first hospital stay was 18 days due to platelets up and down. The second time I was hospitalized about 2weeks total after sending me home after a week of treatments I relapsed. The last 3x it has only been about a week stay. This past December I was not treated with Rituxin due to high incident of death related to COVID concerns for being unvaccinated. After the week in the hospital I’ve still continued to have platelets in the 200,000 range. I have been told TTP is usually a one and done thing! Prayers answered🙏 Hope this is helpful. Blessings always, Lou Ann

Jump to this post


Replies to "Hello auntkk, I have TTP and believe it differs from ITP. When my platelets drop it..."

Oh, I pray that you're problem is "one & done" for sure! Thanks for that info. These blood problems are new to us, but I read what I can to learn about it. My husband has always been pretty healthy with the exception of knee replacements & an episode of melanoma on a mole on his arm, where he had Mohs surgery to remove it. Per the doctors, this ITP came a few months after covid at the end of Dec 2022. Believe me, we had no idea that his platelets were at 1,000 until the PCP dr called to tell him to get to ER immediately. We pray this clears up & goes back to normal so he won't have to take major meds.
Thank you for responding back to me. God bless & trust that you get totally healthy.