I thought I might have IH for a while, but my doctor settled on type 2 narcolepsy. I doubt it makes much difference with the treatment we receive. I too have been on Adderall for a while. I know one thing from my experience you could tell the doctor. Two Adderall pills, whether 20mg or 30mg, does not cover a day. If you take one in the morning it wears off (for me gone in 5 hours), then you crash where it becomes useless for keeping you awake. After that, the second dose follows the same pattern. The crashes also have nasty effects on your emotions. The other thing is that Adderall doesn't really keep me from sleeping anyway. The best thing it does is to make me alert and productive between naps. That is not a small thing. Before Adderall I was completely useless all day long, and I had a lot of emotional problems, enough to check into a psych facility..

Now I have just started Xyrem (just like Xywav), and it has shown a little promise so far. Combined with Adderall I have been awake all day a few times which is really nice. They ramp you up slowly, so it will be a while before I know the full effect. The idea is to stay awake all day after weaning off the Adderall. It’s wicked expensive, but there is an organization called the National Organization for Rare Diseases (NORD) that picks up my tab.

Good luck; I wish you the best! Keep the updates coming.