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Low Platelets: Diagnosis to be confirmed

Blood Cancers & Disorders | Last Active: May 22 2:39am | Replies (87)

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@rockitman

auntkk
I have since been diagnosed with Aplastic Anemia and have been treated with ATZ , cyclosporine and Promacta.
(Treatment started February 1-5, 2023) All my blood levels crashed shortly after being told I had ITP only.
The treatment appears to be working after receiving the ATZ, Cyclosporine and Promacta.
After 9 weeks my blood count levels started to raise. My blood test results are starting to go into the normal range with Platelets rising from 12k 3 weeks ago to 87K, WBC from 1.8 TO 5.3, hemoglobin from 7.4 to 10.8, RBC from 2.1 to 2.8, neutrophils from 0.3 to 3.18. Hoping for continued improvement.
You are your best advocate for your health, find a competent Dr. I went through 3 Dr's before I even got a diagnosis. I would not wait 5-6 months for another blood test. It only took 2 months for my blood cell levels to tumble below normal.
In November I was given Rituximab, Prednisone and Promacta but there was no change in my blood cells or Platelet levels. Platelet transfusions only last 3-4 days. Platelet levels below 10 are critical and below 5 can be fatal if you get a brain bleed. You need weekly blood tests (CBC) to monitor Platelet levels and blood cell levels.
You need a definite diagnosis. I had two bone marrow aspirations and bone biopsies. It took the right Dr to determine my diagnosis.
My current Dr is exceptional, but I had to keep searching till I found a Dr with the knowledge I needed to find my diagnosis. She was at Mayo but is now at Moffitt in Tampa.
Good Luck, best wishes for a recovery and treatment.

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Replies to "auntkk I have since been diagnosed with Aplastic Anemia and have been treated with ATZ ,..."

@rocketman
Thanks for your info. Other than my husband's platelets, all the other blood test results have always remained normal. Due to shortness of breath & fatigue he had a stress test this week & thank God, his test result is good. He'll get another blood workup on the 25th, then monthly if this one is better than 46. We're believing he'll continue to improve, & of course, we'll move ahead if necessary.
Thanks for listening to me! I keep digging for info!