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@afibguy

Hello all. I have been "lurking" here for a while now. Here is my story. I am a 68 year old male in pretty good health. I lift weights, ride my bike, and walk daily. In the summer of 2020, I started experiencing "thumping" in my chest and felt tired all of the time. In October 2020, I was diagnosed with persistent atrial fibrillation. I got an EP and he put me on flecainide for rhythm control and did a cardioversion. I went into NSR, but it only lasted for about a week. Since I was not too symptomatic at that time, my EP dc'd the flecainide and started metoprolol for rate control. He later added diltiazem. I did OK for a while, but I hated the meds. They made me feel almost as bad as the afib. In May of 2021 I went to the hospital to start dofetilide (Tikosyn). I went into NSR after the second dose. I remained in NSR for about a year, but then I started having increasingly frequent break through afib episodes. These episodes were pretty intense, and I was very symptomatic (strong palpitations, shortness of breath, anxiety, etc). So, I had a radio frequency ablation done in June of 2022. The ablation really helped the afib a lot, although I had some SVEs and frequent PVCs afterwards. The SVEs started calming down over the summer until I had abdominal surgery in October for a hernia repair with general anesthesia. Two days after the surgery, I started having frequent PACs along with the PVCs. I started magnesium taurate in December and it has almost totally eliminated the PVCs, and the PACs eventually went away. In January, I met with my EP and complained about feeling generally spacey and low energy with a persistent, mild headachy feeling. I had experienced this for some time, but always attributed it to the afib. But since this feeling persisted after my rhythms were relatively OK, I was thinking it was medication side effects. My EP agreed and had me hold 2 doses of dofetilide to see it that helped. After holding the second dose, I went into afib, but converted to NSR after resuming the dofetilide. Next, I tried holding the diltiazem and after 2 days, I felt better, but then the PACs and SVEs came back with a vengeance (I have a Kardia). So now I remain on dofetilide, metoprolol, and diltiazem. I am doing well rhythmically, but still have the spacey, crappy feeling that I think is medication related. My EP said that he would do a second ablation if I want to get off of the meds. I don't want to do anything this summer, because I want to enjoy the season. He said he could do another radio frequency ablation this fall or if I wanted to wait, the pulse field ablation would be available this spring. I have some decisions to make. Sorry for the lengthy diatribe. I appreciate this site.

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Replies to "Hello all. I have been "lurking" here for a while now. Here is my story. I..."

I meant to say the pulse field ablation will be available next spring.

My experience for what it's worth: Healthy guy that exercises and eats smartly. Had mitral valve repair, ablation, and LAAC at 78, 11 months ago. No more AFIB (it can work permanently, hope so). Off of Eliquis after four months by wearing heart monitor for 30 days to check for AFIB. Daily, I now take only 12.5mg metoprolol, 81mg aspirin, and 29% of RDA magnesium (have read that magnesium and moderate exercise help to stay out of AFIB). Had a great surgeon at WakeMed in Raleigh, Dr. Boulton, who did all of the heart stuff. That was key of course.