Anyone else diagnosed with acoustic neuroma, a benign brain tumor?

I went to Mayo for what I thought was vertigo, they did a hearing test and I was told by the doctor I had a tumor and needed a MRI. I can't have MRI's due to a metal implant in my body so they did a cat scan. I was told it was normal, however I just recently started having some light vertigo. I'm a flight attendant so even slight vertigo can have an impact but also flying can cause vertigo. So my question was was the cat scan as effective as a MRI and could they have missed ti?

I did phone Mayo when I first found that I have an AN, but my insurance at that time was not good in that area. Mayo's office said I could have a DVD of the MRI sent to them.for a second opinion. After my next MRI, I plan to get all three MRIs on a DVD and send them to Mayo's. Now I am on Medicare and a supplement, which should cover better.
Hearing loss seems to be what happens first and balance issues. Depending on the size of the tumor, worse symptoms can occur. My ENT doctor said that radiation is recommened for people past 65 and surgery for younger patients. Smaller tumors are watched with MRIs. 2 percent of radiation cases get cancer, which does not make me very happy, especially since I am already 1 in 100,000 with a AN! When there is surgery or radiation, even worse problems can occur.

How would I join your group? I had an AN removed 6-8-2018. I just celebrated my year anniversary. I had my surgery at Johns Hopkins Hospital in Baltimore, Md. I lost hearing in my right ear. I have hearing aides now. The one hearing aide tells my other ear what it hears. It is very challenging some days. I am thankful to come through the surgery, and also for the challenges I endure daily while still being alive.Balance and headaches seem to be the lasting symptoms that come and go.My name is Vicki.

Hello Vicki I am Ruby and have 2 different tumors and am scared to death with what will happen, so it makes me happy to here you are a survivor!!

Hi Tracy: My name is Rose. I was diagnosed with a acoustic neuroma in 2014. Very scary indeed. I went in to my doctor with an earache. They gave me 2 weeks of antibiotics . After that 2 weeks the side of my head still hurt and I was loosing balance. I went back and was sent to a ENT who did an ear biopsy, nasal passage biopsy and an MRI in a 3 week period.
The biopsy showed nothing as well as the nasal scan. But the MRI came back showing a 3.4 centimeter tumor in my ear canal and growing and pushing my brain stem in too the point that they saw Hydrocephalus(water on my brain). I had no headaches after the earache no pain or dizziness , nor imbalance. There were no symptoms at all.
Three weeks later I met with my surgeons and neurosurgeons and they explained the surgery to me and my children. It was a scary time, BUT I have a daughter who is an RN and any questions I didn't know to answer she did, and by the time my surgery was scheduled, we had all our answers and were as prepared as we could be.
I was diagnosed February 9, 2014, and my surgery was scheduled for March 10, 2014. I am allergic to a lot of the Anastasia drugs they give people when in surgery, so I had to make many scheduled appointments to the neurosurgeons for testing. My surgery was 12 hours. In this 12 hour period I had 4 surgeons and neurosurgeons flip flopping thru my surgery. When one completed their part they came out and updated my daughter so she could update my family as too progress. It took the full 12 hours.
the amazing part is with this surgery it was non cancerous and they scraped on my nerves for 12 hours and needed to leave 2% of the tumor on my brain stem or it would have severed nerves for my face and eye. I am 2 years since this surgery and I still need to see neurosurgeons for MRI and testing. I have imbalance due to the hearing loss in my left ear where the surgery was performed. Things that never bothered me before do now, my balance is still off and will always be off. I just need to adjust my employment and life to the after effects of having needed brain surgery.
Every day is a challenge, but I by the Grace of the Good Lord am alive.