My goodness. Our stories are very similar. I have come to the reality that this is at good as it gets. I am home bound, as dressing and sitting are the worst things for me to do. I think I have tried too many interventions, spinal chord stimulator (twice), Calmare therapy, a peripheral nerve stimulator and numerous meds, vitamins, oils, creams (I also have allodynia on my lower back and bum. All the areas where I had the dreadful shingles. Currently, I am trying red light therapy. I haven't given up but the increase in pain has made things difficult. I am sorry you're not feeling well.