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Low Platelets: Diagnosis to be confirmed

Blood Cancers & Disorders | Last Active: May 22 2:39am | Replies (87)

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@auntkk

@rocketman
I just read your post regarding ITP. I realize it was from Oct 2022, but was wondering what your results have been since then. My husband has ITP. He was hospitalized when his blood test gave a platelet count of 1 (one.) Hosp released him when they got count up to 152, but it continued to drop again. He also took the 4 infusions of Rituximab. 3 wks ago it was 36, this wk platelets are 46. He'll continue with blood tests, but his next oncologist apptmt is not until Oct 2023, unless count drops more. This is nerve-racking, to say the least.

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Replies to "@rocketman I just read your post regarding ITP. I realize it was from Oct 2022, but..."

Hello auntkk,
I have TTP and believe it differs from ITP. When my platelets drop it is because my body stops making platelets due to an enzyme shutting down . The enzyme is AdamsT13 that completely shuts down and it is like my body attacks itself not producing platelets. My first episode was in 2009, I have reoccurring TPP since I have had 5 (2009,2014,2016,2018,2022)total episodes. The first time my platelets dropped to 6,000. I was treated with Rituximab x4 and prednisone the first 4 episodes. The Drs usually test for my level of AdamsT13. I also have Plasma Pharisees (frozen plasma exchange) daily while in the hospital. My first hospital stay was 18 days due to platelets up and down. The second time I was hospitalized about 2weeks total after sending me home after a week of treatments I relapsed. The last 3x it has only been about a week stay. This past December I was not treated with Rituxin due to high incident of death related to COVID concerns for being unvaccinated. After the week in the hospital I’ve still continued to have platelets in the 200,000 range. I have been told TTP is usually a one and done thing! Prayers answered🙏 Hope this is helpful. Blessings always, Lou Ann