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Pain in the butt - Can't sit down

Chronic Pain | Last Active: Sep 23 9:49am | Replies (336)

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@vinnie4646

I had Tarlov cyst surgery in 2015. And a revision in 2016 due to a spinal cord fluid leak. Now living in excruciating debilitating pudendal neuralgia pain. Pain while sitting, standing. Laying on my side. The only thing that helps is laying flat on my stomach for hours. I’ve had every test and every injection done and all leads to pudendal neuralgia. I’ve had 2 unsuccessful stimulator implants done since 2017, implanted and removed. I’ve had 3 second opinions about a pain pump. No dr will do surgery underneath the sacrum it’s just to dangerous could cause paralysis. I’m going in for a second pain pump trial next Monday and have had heard good success testimonials from this site so I’m scared to have another surgery but I’m at the end of my rope and at 61 years old I don’t think I would like to live like this for another 20 years? So I said no more surgery after the last surgery but here we go again. Can’t stop trying and can’t stay like this either so for now signing off in great hopes again for the third time.

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Replies to "I had Tarlov cyst surgery in 2015. And a revision in 2016 due to a spinal..."

The pain pump trial usually involves a pain specialist making a series of 2 injections using some kind of morphine mix into the intrathecal space around the spinal cord. My first injection did nothing. The second injection caused my pain level to drop from about an 8 to a 2. It felt great. Except that I was still aware of the "lumps" in my buttocks (just not painful, which I can handle).