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Prescribed Ofev, anyone have experience with this drug?

Lung Health | Last Active: May 13, 2023 | Replies (36)

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@wreath

My husband tried Ofev for his pulmonary fibrosis. But the side effects were so bad for him that he decided he would rather have quality of life instead of quantity. We liked to travel, so the diarrhea made travel difficult. But medications affect people differently. So don’t rule it out. It is very expensive, but he had excellent insurance that paid for all his medications.

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Replies to "My husband tried Ofev for his pulmonary fibrosis. But the side effects were so bad for..."

So how long was he on it? I've heard the first three weeks or so are the worst. I'm hoping to go back to work and wonder if the diarrhea will make it difficult. I work part time but I'm on my feet most of the day so it's hard to get to a restroom quickly. I'm on Medicare so I'm not sure on the cost of this drug.
Thanks so much for your response.
Carol