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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: 1 hour ago | Replies (400)

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@nypara66

Once you get your numbers down, you’ll be able to go about your normal lifestyle. They’ll do an ultra sound to make sure your spleen and other organs aren’t enlarged. Enlarged spleen isn’t dangerous, just uncomfortable at times. My husbands has been for over 20 years due to liver disease. Blot clots is our biggest worry. If you haven’t had issues with that with your numbers high, that’s a really good sign! Hoping for you they get it under control quickly.

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Thank you for the information. I have had some issues with blood clots in the past prior to my PV diagnosis so I am a bit more concerned over that. I am still trying to push to get back blood thinners or similar meds to help with that since its the main concern.