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Polycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: Aug 26 12:21pm | Replies (395)Comment receiving replies
I too had a similar issue with my primary care provider. I had already shown signs and symptoms but were ignored. Looking back at my previous test results I had already been off the charts for almost 2 years. It took persistence to advocate for myself to finally get an explanation and referral. I just hope it's not too late to manage it from progressing further.
Replies to "I too had a similar issue with my primary care provider. I had already shown signs..."
Thanks Darryl. Glad to hear you are on the right track right now. Sometimes I question those who practice medicine and some of these restrictions that are placed on them. I was seeing someone who had a hourly 'quota' from a large national medical company. When I finally got hooked up with a good medical school at a state university things began to roll. I hope that I have end results like you. Thanks for the kind comments. Carol
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Once you get your numbers down, you’ll be able to go about your normal lifestyle. They’ll do an ultra sound to make sure your spleen and other organs aren’t enlarged. Enlarged spleen isn’t dangerous, just uncomfortable at times. My husbands has been for over 20 years due to liver disease. Blot clots is our biggest worry. If you haven’t had issues with that with your numbers high, that’s a really good sign! Hoping for you they get it under control quickly.