I believe my neuropathy caused by having COVID-19. Maybe long COVID?

Yes - I never had neuropathy until I got the boosters.

IDK about boosters specifically, but researchers at MGH have had success treating Covid vaccine neuropathy using steroids and IVIG. You should google for it if you’re still having issues.

I agree, my neuropathy got worse. I never had neuropathy until after my last vaccination in Sept, 2022.
I came down with COVID-19 a few days after Thanksgiving 2022.
I was diagnosed with PN the beginning of the month, April 7th.
Hope this helps!
Pat

Thanks for your input!

Yes it happened to me as well. Never had neuropathy until after my 2nd vaccination then hit hard and painful in my hands and feet

I didn't get neuropathy in my left leg up my whole left side, until I go the 1st Booster shot ! It fired andwouldnt stop.. Now, I can't get any treatment my left side!

I really believe I got worse after the Covid vaccines. I had tingling and burning in my toes since 2012. After taking the vaccines I became a person who needed assistance doing almost everything. In the meantime, my A1C was below six. And, my doctor took me off all diabetic medications. But the neuropathy kept getting worse. I was dropping things, didn’t feel the gas peddle or brake, numbness and tingling in hands and feet, burning all the time; it never stopped. However, we were told to take the vaccine to keep our jobs. So, I got both does of the Moderna. I ended up in the ER with very high blood pressure after both shots. Shortly after getting vaccinated, the pain got so much worse. I made an appointment with PCP and got into see a Neurologist. I saw him the first time, added more Gabapentin and sent me on my way. Covid hit full blast and I never got to see that neurologist again. I began to think this pain was all in my head so I continued to work (as a first grade teacher). My husband was driving me to and from. I cried all the time because of the pain and felt like I was slowly losing myself. So, this is not even a dent into my story but I truly agree that the Covid Vaccine made my neuropathy worse.

Gabapentin did nothing for my neuropathy but Benfotiamine (over the counter) really has helped a lot as well as a few others but I strongly recommend Benfotiamine up to 300mg twice a day although you can start with it once a day or 150mg twice a day. Working very well for me along with other otc drugs.

Wow!
Thank you all for sharing!!

Imagine !
For others’, and the future’s, sake our healthcare system having leadership and management that listens, learns, and improves preventing and healing PN.

Our stories reveal the need - opportunity - for human leadership.
A Mayo Clinic opportunity.

Imagine all our experiences, and others, being shared, captured, and used to inform and help our healthcare system serve our physicians in decision-making for serving the needs of patients.

Serving patients in understanding, preventing, and healing PN - etc.

Opportunity for human leadership in the use of technology for humans’, not machines, sake.

My journey with PN, and all your stories, have revealed to me the need and urgency for human leadership in healing our healthcare system.